The Experiences of Parents of Children with Thalassemia Major in Turkey: A Qualitative Study
International Journal of Caring Sciences
; 15(1):424-434, 2022.
Article
in English
| ProQuest Central | ID: covidwho-1871165
ABSTRACT
Background:
Invasive medical procedures and their complications of Thalassemia Major still affect the quality of life of all patients and their caregivers.Aim:
This study evaluates the experiences of parents of children with Thalassemia Major.Method:
The qualitative phenomenological method was used to determine the parents' experiences. The study sample included 14 parents who met the inclusion criteria. Individual interviews, an introductory information form and a semi-structured interview form were used for data collection. The data were analyzed with Colaizzi's sevenstep method.Results:
Four themes of the interviews were established unprecedented psychosocial distress, social support, financial burden and concern about children in the future Parents stated that they experienced shock, sadness, fear, stress, depression, death anxiety, fatigue and burnout. Especially with the COVID-19 epidemic in our country, parents stated that their lives became more difficult and their concerns about their children increased.Conclusions:
Healthcare staffs need to understand parents' psychosocial distress and coping strategies to provide support and guidance from the outset of treatment and care. It is recommended that interventions be planned and implemented in a way that maximizes the quality of life of children and families.
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Collection:
Databases of international organizations
Database:
ProQuest Central
Type of study:
Qualitative research
Language:
English
Journal:
International Journal of Caring Sciences
Year:
2022
Document Type:
Article
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