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Patient and Public Involvement in Dermatology Research: A Review.
Heague, Megan; Ray, Chandrima; Bowers, Joanne; Guckian, Jonathan; Arents, Bernd W M; Layton, Alison.
  • Heague M; University of Leeds Medical School, Leeds, UK.
  • Ray C; Poznan University of Medical Sciences, Poznan, Poland.
  • Bowers J; Harrogate and District NHS Foundation Trust, Harrogate, North Yorkshire, UK.
  • Guckian J; Dermatology Department, Leeds Teaching Hospitals Trust, Chapeltown Road, Leeds, UK. Jonathan.guckian@outlook.com.
  • Arents BWM; Dutch Association for People with Atopic Dermatitis (VMCE), Nijkerk, The Netherlands.
  • Layton A; Hull York Medical School, York University, Heslington, York, UK.
Am J Clin Dermatol ; 23(3): 319-329, 2022 May.
Article in English | MEDLINE | ID: covidwho-1872794
ABSTRACT
Patient and public involvement (PPI) in research is defined as research being carried out 'with' or 'by' members of the public, patients, and carers, on both an individual and a group level, rather than simply 'about', or 'for' them. Within dermatology, PPI is increasingly recognised as a vital component of research as it helps to ensure that research remains relevant to the populations we intend to serve. Dermatology scholarship, with its rich psychosocial implications due to the stigma, physical disability, and mental health burdens these conditions may incur, is in a unique position to benefit from PPI to unlock previously inaccessible patient lived experiences or therapeutic consequences. Throughout the rapid growth of PPI, it has been infused throughout the research lifecycle, from design to dissemination and beyond. After first explaining the principles of PPI, we examine the existing evidence base at each research stage to explore whether our specialty has effectively harnessed this approach and to identify any subsequent impact of PPI. Finally, we scrutinise the challenges faced by those implementing PPI in dermatology research.
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Full text: Available Collection: International databases Database: MEDLINE Main subject: Dermatology Type of study: Qualitative research Limits: Humans Language: English Journal: Am J Clin Dermatol Journal subject: Dermatology Year: 2022 Document Type: Article Affiliation country: S40257-022-00680-5

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Full text: Available Collection: International databases Database: MEDLINE Main subject: Dermatology Type of study: Qualitative research Limits: Humans Language: English Journal: Am J Clin Dermatol Journal subject: Dermatology Year: 2022 Document Type: Article Affiliation country: S40257-022-00680-5