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Measuring Health-Related Quality of Life With Multimodal Data: Viewpoint.
Clay, Ieuan; Cormack, Francesca; Fedor, Szymon; Foschini, Luca; Gentile, Giovanni; van Hoof, Chris; Kumar, Priya; Lipsmeier, Florian; Sano, Akane; Smarr, Benjamin; Vandendriessche, Benjamin; De Luca, Valeria.
  • Clay I; Digital Medicine Society, Boston, MA, United States.
  • Cormack F; Cambridge Cognition, Cambridge, United Kingdom.
  • Fedor S; MIT Media Lab, Cambridge, MA, United States.
  • Foschini L; Evidation Health, San Mateo, CA, United States.
  • Gentile G; University of Padua, Padua, Italy.
  • van Hoof C; imec, Leuven, Belgium.
  • Kumar P; Rune Labs, San Fransisco, CA, United States.
  • Lipsmeier F; pRED, Hoffmann-La Roche, Basel, Switzerland.
  • Sano A; Department of Electrical and Computer Engineering, Rice University, Houston, TX, United States.
  • Smarr B; Department of Bioengineering and Halicioglu Data Science Institute, University of California, San Diego, San Diego, CA, United States.
  • Vandendriessche B; Byteflies, Antwerp, Belgium.
  • De Luca V; Novartis Institutes for Biomedical Research, Basel, Switzerland.
J Med Internet Res ; 24(5): e35951, 2022 05 26.
Article in English | MEDLINE | ID: covidwho-1875289
ABSTRACT
The ability to objectively measure aspects of performance and behavior is a fundamental pillar of digital health, enabling digital wellness products, decentralized trial concepts, evidence generation, digital therapeutics, and more. Emerging multimodal technologies capable of measuring several modalities simultaneously and efforts to integrate inputs across several sources are further expanding the limits of what digital measures can assess. Experts from the field of digital health were convened as part of a multi-stakeholder workshop to examine the progress of multimodal digital measures in two key areas detection of disease and the measurement of meaningful aspects of health relevant to the quality of life. Here we present a meeting report, summarizing key discussion points, relevant literature, and finally a vision for the immediate future, including how multimodal measures can provide value to stakeholders across drug development and care delivery, as well as three key areas where headway will need to be made if we are to continue to build on the encouraging progress so far collaboration and data sharing, removal of barriers to data integration, and alignment around robust modular evaluation of new measurement capabilities.
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Full text: Available Collection: International databases Database: MEDLINE Main subject: Quality of Life / Delivery of Health Care Type of study: Experimental Studies / Prognostic study / Randomized controlled trials Limits: Humans Language: English Journal: J Med Internet Res Journal subject: Medical Informatics Year: 2022 Document Type: Article Affiliation country: 35951

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Full text: Available Collection: International databases Database: MEDLINE Main subject: Quality of Life / Delivery of Health Care Type of study: Experimental Studies / Prognostic study / Randomized controlled trials Limits: Humans Language: English Journal: J Med Internet Res Journal subject: Medical Informatics Year: 2022 Document Type: Article Affiliation country: 35951