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Amplifying patient voices amid pandemic: Perspectives on tracheostomy care, communication, and connection.
Pandian, Vinciya; Hopkins, Brandon S; Yang, Christina J; Ward, Erin; Sperry, Ethan D; Khalil, Ovais; Gregson, Prue; Bonakdar, Lucy; Messer, Jenny; Messer, Sally; Chessels, Gabby; Bosworth, Barbara; Randall, Diane M; Freeman-Sanderson, Amy; McGrath, Brendan A; Brenner, Michael J.
  • Pandian V; Immersive Learning and Digital Innovation, Johns Hopkins School of Nursing, Baltimore, MD, United States of America; Outcomes After Critical Illness and Surgery (OACIS) Research Group, Johns Hopkins University, Baltimore, MD, United States of America. Electronic address: vpandia1@jhu.edu.
  • Hopkins BS; Department of Otolaryngology, Head and Neck Surgery, The Cleveland Clinic, Cleveland, OH, United States of America. Electronic address: hopkinb@ccf.org.
  • Yang CJ; Department of Otorhinolaryngology-Head and Neck Surgery, Albert Einstein School of Medicine/Montefiore Medical Center, Bronx, New York, NY, United States of America. Electronic address: chyan@montefiore.org.
  • Ward E; Global Tracheostomy Collaborative, Raleigh, NC, United States of America; Family Liaison, Multidisciplinary Tracheostomy Team, Boston Children's Hospital, Boston, MA, United States of America; MTM-CNM Family Connection, Inc., Methuen, MA, United States of America(1).
  • Sperry ED; Cincinnati Children's Hospital Medical Center, Cincinnati, OH, United States of America.
  • Khalil O; Johns Hopkins University School of Nursing, Baltimore, MD, United States of America. Electronic address: okhalil2@jhmi.edu.
  • Gregson P; Tracheostomy Review and Management Services, Austin Health, Melbourne, VIC, Australia. Electronic address: Prue.gregson@austin.org.au.
  • Bonakdar L; Tracheostomy Review and Management Services, Austin Health, Melbourne, VIC, Australia. Electronic address: Lucy.BONAKDAR@austin.org.au.
  • Messer J; Austin Health Tracheostomy Patient & Family Forum.
  • Messer S; Austin Health Tracheostomy Patient & Family Forum.
  • Chessels G; Austin Health Tracheostomy Patient & Family Forum, Tracheostomy Review and Management Services, Heidelberg Repatriation Hospital, Heidelberg Heights, VIC, Australia. Electronic address: gabby.chessells@austin.org.au.
  • Bosworth B; United States of America.
  • Randall DM; Memorial Regional Health System, Fort Lauderdale, FL, United States of America. Electronic address: drandall@mhs.net.
  • Freeman-Sanderson A; Graduate School of Health, University of Technology, Sydney, NSW, Australia; Critical Care Division, The George Institute for Global Health, Sydney, NSW, Australia. Electronic address: amy.freeman-sanderson@uts.edu.au.
  • McGrath BA; Anaesthesia & Intensive Care Medicine, Manchester University Hospital NHS Foundation Trust, Wythenshawe, Manchester, United Kingdom; Manchester Academic Critical Care, Division of Infection, Immunity and Respiratory Medicine, Faculty of Biology, Medicine and Health, The University of Manchester,
  • Brenner MJ; Department of Otolaryngology-Head & Neck Surgery, University of Michigan Medical Center, Ann Arbor, MI, United States of America; Global Tracheostomy Collaborative, Raleigh, NC, United States of America. Electronic address: mbren@med.umich.edu.
Am J Otolaryngol ; 43(5): 103525, 2022.
Article in English | MEDLINE | ID: covidwho-1944084
ABSTRACT

OBJECTIVE:

To investigate perspectives of patients, family members, caregivers (PFC), and healthcare professionals (HCP) on tracheostomy care during the COVID-19 pandemic.

METHODS:

The cross-sectional survey investigating barriers and facilitators to tracheostomy care was collaboratively developed by patients, family members, nurses, speech-language pathologists, respiratory care practitioners, physicians, and surgeons. The survey was distributed to the Global Tracheostomy Collaborative's learning community, and responses were analyzed.

RESULTS:

Survey respondents (n = 191) from 17 countries included individuals with a tracheostomy (85 [45 %]), families/caregivers (43 [22 %]), and diverse HCP (63 [33.0 %]). Overall, 94 % of respondents reported concern that patients with tracheostomy were at increased risk of critical illness from SARS-CoV-2 infection and COVID-19; 93 % reported fear or anxiety. With respect to prioritization of care, 38 % of PFC versus 16 % of HCP reported concern that patients with tracheostomies might not be valued or prioritized (p = 0.002). Respondents also differed in fear of contracting COVID-19 (69 % PFC vs. 49 % HCP group, p = 0.009); concern for hospitalization (55.5 % PFC vs. 27 % HCP, p < 0.001); access to medical personnel (34 % PFC vs. 14 % HCP, p = 0.005); and concern about canceled appointments (62 % PFC vs. 41 % HCP, p = 0.01). Respondents from both groups reported severe stress and fatigue, sleep deprivation, lack of breaks, and lack of support (70 % PFC vs. 65 % HCP, p = 0.54). Virtual telecare seldom met perceived needs.

CONCLUSION:

PFC with a tracheostomy perceived most risks more acutely than HCP in this global sample. Broad stakeholder engagement is necessary to achieve creative, patient-driven solutions to maintain connection, communication, and access for patients with a tracheostomy.
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Full text: Available Collection: International databases Database: MEDLINE Main subject: Patients / Postoperative Care / Tracheostomy / Family / Caregivers / Communication Type of study: Experimental Studies / Observational study / Prognostic study / Qualitative research / Randomized controlled trials Topics: Long Covid Limits: Humans Language: English Journal: Am J Otolaryngol Year: 2022 Document Type: Article

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Full text: Available Collection: International databases Database: MEDLINE Main subject: Patients / Postoperative Care / Tracheostomy / Family / Caregivers / Communication Type of study: Experimental Studies / Observational study / Prognostic study / Qualitative research / Randomized controlled trials Topics: Long Covid Limits: Humans Language: English Journal: Am J Otolaryngol Year: 2022 Document Type: Article