An international clinical perspective on functioning and disability in adults with cerebral palsy.
Disabil Health J
; 15(3): 101318, 2022 07.
Article
in English
| MEDLINE | ID: covidwho-1982913
ABSTRACT
BACKGROUND:
This international, multi-center cross-sectional study is one of the preparatory studies in the development of the International Classification of Functioning, Disability and Health (ICF) Core Sets for adults with cerebral palsy (CP) to describe their functioning and health.OBJECTIVE:
To identify the most common problems in functioning of adults with CP presenting in healthcare services, and facilitating and hindering environmental factors, using the ICF as a reference.METHODS:
Participants were adults with CP who visited healthcare services in the Netherlands, Sweden, Thailand, and the United States. Structured interviews were performed using an adapted version of the generic ICF checklist 2.1a (106 categories) to rate the participant's functioning and the impact of environmental factors. Descriptive statistics were used for frequency analysis.RESULTS:
In total, 101 participants were included, of whom 69 without intellectual disability (mean age ± SD of 38.4 ± 14.7 y; 85.5% with spastic type of CP; Gross Motor Function Classification System (GMFCS) levels I-V) and 32 with intellectual disability (mean age ± SD of 25.0 ± 6.4 y; 71.9% with spastic type of CP; GMFCS levels I-V). A total of 104 ICF categories in the ICF checklist were frequently present in adults with CP 27 body functions, 4 body structures, 53 activities and participation, and 20 environmental factors.CONCLUSIONS:
The most common problems of adults with CP presenting in healthcare services are diverse and highly prevalent. The study results add the clinical perspective on relevant categories of functioning to the basis for developing the ICF Core Sets for adults with CP.Keywords
Full text:
Available
Collection:
International databases
Database:
MEDLINE
Main subject:
Cerebral Palsy
/
Disabled Persons
/
Intellectual Disability
Type of study:
Observational study
/
Prognostic study
/
Qualitative research
/
Randomized controlled trials
Limits:
Adult
/
Humans
Language:
English
Journal:
Disabil Health J
Journal subject:
Rehabilitation
/
Public Health
/
Health Services
Year:
2022
Document Type:
Article
Affiliation country:
J.dhjo.2022.101318
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