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A PATIENT-LED SURVEY into the BENEFITS and LIMITATIONS of TELEMEDICINE APPOINTMENTS for ASSESSING CHILDREN and YOUNG PEOPLE with RHEUMATIC CONDITIONS: COMPARING EUROPEAN and CANADIAN COHORTS
Annals of the Rheumatic Diseases ; 81:1131, 2022.
Article in English | EMBASE | ID: covidwho-2008798
ABSTRACT

Background:

During the COVID-19 (coronavirus) pandemic, some provision of healthcare shifted to remote, technology-assisted appointments (telemedicine). Whilst parents/carers of children and young people with rheumatic conditions have reported benefts of telemedicine, concerns remain.

Objectives:

This patient and parent-led project sought to understand the views of parents/carers about telemedicine, identifying the benefts and limitations of remote technology-assisted appointments, and comparing views between Canadian and European cohorts.

Methods:

An online survey was developed, translated into multiple languages and shared via social media and patient organisations, targeted at parents of children and young people with rheumatic, autoimmune and autoinfammatory conditions. Fieldwork took place in April 2021 in Europe and May 2021 in Canada. Consent was provided during enrollment.

Results:

A total of 290 responses were received (133 Europe;157 Canada). Of these, 73% were female, median age 12. Over half of respondents (53%) in Europe reported travelling over an hour to in-person appointments with their paediatric rheumatologist, compared to a signifcantly higher proportion of respondents in Canada (87%). Consequently, in-person appointments represent a greater time burden amongst Canadian car-egivers, though both groups report appointments taking over three hours in total (51% Europe, 69% Canada). Prior to COVID-19, most had never had a telemedicine appointment (92% Europe, 95% Canada). Since March 2020, the majority (71% Europe, 82% Canada) had at least one telemedicine appointment. When asked about aspects of telemedicine, a greater proportion of respondents from Canada answered favourably compared to those from Europe with the majority reporting telemedicine appointments had saved them time, enabled them to have an appointment and that it made the appointment safer. However, most felt that their consultant could not properly assess their child (72% Europe, 78% Canada, P<.05). Overall respondents said they would prefer the next appointment to be in-person (82% Europe, 62% Canada, p<.05), although 31% from Canada were amenable to a combination of in-person and telemedicine-based care.

Conclusion:

There are advantages to telemedicine, notably saving time and making appointments accessible. Families from Canada tended to view telemed-icine more favourably than those from Europe, although the majority from both cohorts reported concerns about the ability to assess their child. There may be value in providing training to parents to enhance the accuracy of home-based assessments, particularly when the disease is stable. However, parents continue to report the value of in-person appointments.
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Full text: Available Collection: Databases of international organizations Database: EMBASE Type of study: Cohort study / Observational study / Prognostic study Language: English Journal: Annals of the Rheumatic Diseases Year: 2022 Document Type: Article

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Full text: Available Collection: Databases of international organizations Database: EMBASE Type of study: Cohort study / Observational study / Prognostic study Language: English Journal: Annals of the Rheumatic Diseases Year: 2022 Document Type: Article