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Use of Telemedicine and Home Infusion
Journal of Neuromuscular Diseases ; 9:S37-S38, 2022.
Article in English | EMBASE | ID: covidwho-2043396
ABSTRACT
The COVID-19 pandemic has further highlighted the management difficulties of NMDs patients and the necessity to continue the program of implementation of standard of care yet started in Europe with the definition of the ERNs and with different applications in the various European countries. It will be increasingly necessary to favor and further develop smart management care through the implementation of IT platforms, telemedicine services and other eHealth technologies. In the near future we are moving towards a health system that supports scientific research, strengthens prevention, and brings medicine home. The outbreak of COVID-19 has forced the health care system to undergo profound rearrangements in its services and facilities. In this setting, inpatient and outpatient services had to rethink and reorganize their activities to meet the needs of patients during the lockdown. The rapid and abrupt COVID-19 shutdowns and stay-at-home orders imposed challenges to routine clinical management and clinical trials. The opportunity for real-world evaluation and reduced patient burden are clear benefits to remote assessment and may provide a more robust understanding and characterization of disease impact in NMD. The quality of patient-physician relationship, the modality of remote clinical assessment and monitoring, and the administration of therapies are the key elements to be provided in neuromuscular Telemedicine. Telemedicine permits the maintenance of a close patient-physician relationship. Other important aspect is digital therapies I.e., access in hospital settings to perform medical therapies that can be performed only and exclusively in protected settings (such as antisense oligonucleotides for SMA or Patisiran for genetic amyloidosis), but some treatments can be home-based, such as subcutaneous immunoglobulins, or enzyme replacement therapy for Pompe disease.
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Full text: Available Collection: Databases of international organizations Database: EMBASE Language: English Journal: Journal of Neuromuscular Diseases Year: 2022 Document Type: Article

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Full text: Available Collection: Databases of international organizations Database: EMBASE Language: English Journal: Journal of Neuromuscular Diseases Year: 2022 Document Type: Article