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Balancing health privacy, health information exchange, and research in the context of the COVID-19 pandemic.
Lenert, Leslie; McSwain, Brooke Yeager.
  • Lenert L; Center for Biomedical Informatics, Medical University of South Carolina, Charleston, South Carolina, USA.
  • McSwain BY; South Carolina Childrens' Telehealth Collaborative, South Carolina, USA.
J Am Med Inform Assoc ; 27(6): 963-966, 2020 06 01.
Article in English | MEDLINE | ID: covidwho-20452
ABSTRACT
The novel coronavirus disease 2019 infection poses serious challenges to the healthcare system that are being addressed through the creation of new unique and advanced systems of care with disjointed care processes (eg, telehealth screening, drive-through specimen collection, remote testing, telehealth management). However, our current regulations on the flows of information for clinical care and research are antiquated and often conflict at the state and federal levels. We discuss proposed changes to privacy regulations such as the Health Insurance Portability and Accountability Act designed to let health information seamlessly and frictionlessly flow among the health entities that need to collaborate on treatment of patients and, also, allow it to flow to researchers trying to understand how to limit its impacts.
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Full text: Available Collection: International databases Database: MEDLINE Main subject: Pneumonia, Viral / Coronavirus Infections / Confidentiality / Government Regulation / Pandemics / Health Information Exchange / Betacoronavirus Type of study: Observational study / Prognostic study Limits: Humans Country/Region as subject: North America Language: English Journal: J Am Med Inform Assoc Journal subject: Medical Informatics Year: 2020 Document Type: Article Affiliation country: Jamia

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Full text: Available Collection: International databases Database: MEDLINE Main subject: Pneumonia, Viral / Coronavirus Infections / Confidentiality / Government Regulation / Pandemics / Health Information Exchange / Betacoronavirus Type of study: Observational study / Prognostic study Limits: Humans Country/Region as subject: North America Language: English Journal: J Am Med Inform Assoc Journal subject: Medical Informatics Year: 2020 Document Type: Article Affiliation country: Jamia