A Qualitative Evaluation of a Community-Led Telehealth Training Program for Cancer Survivors

ABSTRACT

INTRODUCTION: Telehealth services are increasingly used to facilitate cancer survivorship care. Barriers including unreadiness, digital literacy, and access may be overcome with dedicated patient training programs. This study assesses experiences of educators and cancer survivors in a community-led telehealth training pilot program. METHOD(S) Individual semi-structured interviews with Cancer Awareness Network educators and patients conducted October 2021 to February 2022 were transcribed and analyzed in NVivo 12 using thematic analysis. RESULT(S) Participants include 6 educators (19 to 68 years old, 83% Black, 100% female) and 3 patients (60 to 85 years old, 100% Black, 67% female). Educators and patients found training acceptable, with successful techniques including repetition, encouragement, and demonstration followed by teach-back. Both endorsed increased confidence, and patients used telehealth without significant issues after one session. The COVID-19 pandemic was both a facilitator and barrier to training as it motivated patients to use telemedicine to avoid in-person visits but hindered in-person training. Other facilitators included family/caregiver support and provision of devices and WiFi. Patient-level barriers included apprehension, older age, limited digital literacy, old devices, remembering passwords, and WiFi setup. Organization/system-level barriers included interparty communication for training setup, participant recruitment, and knowledge of hospital-specific telehealth platforms. Suggestions included instructional videos, increased outreach, and follow-up for reinforcement. Conclusion(s) Telehealth training improves patient confidence and uptake using various teaching techniques. Future steps include program expansion and incorporation of suggestions. Training programs with supplemental resources are a feasible and seminal intervention for telehealth equity among cancer survivors with low digital literacy, increased age, and/or digital poverty.