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Parental experience of COVID-19 lockdown in the children and young people (CYP) with type 1 diabetes (T1D) and behavioral disorder (BD)-A qualitative analysis
Pediatric Diabetes ; 23(Supplement 31):49, 2022.
Article in English | EMBASE | ID: covidwho-2137175
ABSTRACT

Introduction:

Management of T1D with BD during lockdown was challenging. Objective(s) To explore parents' experience in managing CYP with T1D & BD during the lockdown and its influence in this cohort. To understand the effect of lockdown on emotional health for providing better care in the future. Method(s) The parents were randomly selected (n = 10) from the diabetes clinic. The data were collected using structured open and closed-ended questionnaires. Thematic analysis & deductive coding techniques were used to construct a theory. Result(s) Most parents believe that the risk of COVID-19 was higher than that of T1D complications, leading to delays in seeking medical attention. Fear, anxiety, and helplessness were the most common emotions linked to uncertainty, conflicting information and unending speculation based on daily media reports of fatalities. Most parents described isolation, restricted physical activity, and stress-induced eating behavior as responsible for weight gain and poor diabetes control. Parents universally stated reduced quality of life, worsening symptoms of autism and attention deficit hyperactivity disorder, explained partly by the suspension of traditional care during the lockdown. Parents reported CYP as having more frequent episodes of meltdowns, arguments, emotional outbursts, destructive behavior, deliberate self-harm, and sleep disturbances and anxiety around losing family members to COVID-19. Additionally, loss of extended family support/peer support in school during the lockdown and a 'toxic' home environment aggravated behavioral deterioration. Furthermore, the suspension of traditional consultant-led clinics and unfamiliarity with remote consultations were other influencers of anxiety. Conclusion(s) Parents reported a significant deterioration in the behavior of CYP with T1D & BD during the lockdown, which may affect their T1D control. Future studies are required to better understand the health need of this unique cohort so that resources can be aptly diverted to deliver patient-focused diabetes care.
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Full text: Available Collection: Databases of international organizations Database: EMBASE Type of study: Qualitative research Language: English Journal: Pediatric Diabetes Year: 2022 Document Type: Article

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Full text: Available Collection: Databases of international organizations Database: EMBASE Type of study: Qualitative research Language: English Journal: Pediatric Diabetes Year: 2022 Document Type: Article