The Management of Functional Tic Like Behaviours: Psychoeducation Resources for Carers and Schools

ABSTRACT

Background: There has been an increase in the occurrence of sudden onset functional tic-like behaviours (FTLBs) in adolescents during the COVID-19 pandemic, which has had a significant impact on the affected individual's quality of life and access to education. Support for the management of FTLBs following diagnosis is limited and, when it is available, waiting lists to receive such support are long. Objective(s) Our aim was to devise and evaluate psychoeducation materials to guide carers and schools in how best to support young people with the day-to-day management of FTLBs. Method(s) A 3-h clinician-led webinar for carers and an advice sheet for schools were developed. The webinar was attended by 20 carers and the advice sheet was sent to a selection of schools of young people attending our service. Carers attending the webinar completed a pre-and post-evaluation measure and feedback was gained on the advice sheet via consultation with schools and young people. Result(s) Results from the completed evaluation measures indicated an improvement in carers' understanding of FTLBs and their management and increased confidence in supporting their child with the movements both at home and school. Initial consultation with schools and young people regarding the advice sheet for schools suggests the resource increased their understanding of FTLBS and gave useful management strategies. Conclusion(s) Psychoeducation resources can serve as an important component of a wider support package for young people with FTLBs. We highlight the need for further evaluation of the effectiveness of such resources, in particular, any direct impact on FTLBs.