Parent resolution of diagnosis and intervention fidelity in a parent-delivered intervention for pre-school children with autism: A mixed methods study
Research in Autism Spectrum Disorders
; 101, 2023.
Article
in English
| EMBASE | ID: covidwho-2241131
ABSTRACT
Background:
There is growing interest in parent-delivered interventions (PDI) for children with autism. Treatment fidelity has been associated with child outcomes in PDI but little is known about what impacts fidelity. One factor not previously examined is parents' resolution to the autism diagnosis which involves adjusting expectations about the child and sensitively responding to their cues, strengths and needs. Relatively little is known about resolution in the context of autism but there is evidence of an association between resolution and parent wellbeing.Method:
The study adopted a mixed methods approach to examine whether there is an association between PDI fidelity and parent resolution to diagnosis, and whether resolution is associated with parent wellbeing. Parents of 31 preschool children diagnosed with autism who attended up to 12 Parent-delivered Early Start Denver Model (P-ESDM) coaching sessions participated in the study. A thematic analysis of parent interviews was also undertaken to identify themes raised by resolved and unresolved parents in interviews.Results:
There was no difference in overall mean fidelity scores between resolved and unresolved parents. Those classified as resolved had lower depression scores and parenting stress scores than parents classified as unresolved. The qualitative analysis revealed that parents' perceptions of their child's progress and their hopes for the future appeared to distinguish resolved and unresolved parents.Conclusions:
Findings suggest that parent wellbeing and child progress may predict resolution which was not related to parent treatment fidelity in this study. Parent wellbeing and resolution status should be assessed at entry to PDI.
adult; anxiety; article; autism; Autism Diagnostic Observation Schedule; caregiver; child; clinical article; controlled study; coronavirus disease 2019; depression; Depression, Anxiety and Stress Scale; Depression, Anxiety and Stress Scale-21; distress syndrome; early intervention; externalization (behavior); father; female; human; intervention fidelity; male; mother; Mullen scales of early learning; parent delivered intervention; parental attitude; parental stress; Parenting Stress Index; postgraduate education; pregnancy; preschool child; qualitative analysis; qualitative diagnosis; quantitative study; structured interview; thematic analysis; wellbeing
Full text:
Available
Collection:
Databases of international organizations
Database:
EMBASE
Type of study:
Experimental Studies
Language:
English
Journal:
Research in Autism Spectrum Disorders
Year:
2023
Document Type:
Article
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