Development and measurement properties of the PEM/PESE activity questionnaire (PAQ).
Work
; 74(4): 1187-1197, 2023.
Article
in English
| MEDLINE | ID: covidwho-2256362
ABSTRACT
BACKGROUND:
Existing instruments often are inappropriate to measure the effects of post-exertional malaise (PEM) and post-exertional symptom exacerbation (PESE) on activities of daily living (ADLs). A validated questionnaire to measure self-reported ability with ADLs would advance research and clinical practice in conditions like myalgic encephalomyelitis and Long Covid.OBJECTIVE:
Determine the measurement properties of the PEM/PESE Activity Questionnaire (PAQ).METHODS:
The PAQ is adapted from the Patient Specific Functional Scale. Respondents rated three self-selected ADLs on two 0-100 scales, including current performance compared to (1) a 'good day' and (2) before illness. Respondents provided a Burden of Functioning rating on a 0-100 scale, anchored at 0 being the activity took "No time, effort, and resources at all" and 10 being "All of my time, effort, and resources." Respondents took the PAQ twice, completing a demographic questionnaire after the first PAQ and before the second PAQ. Descriptive statistics and intraclass correlation coefficients were calculated for each scale to assess test-retest reliability. Minimum detectable change outside the 95% confidence interval (MDC95) was calculated. Ceiling and floor effects were determined when the MDC95 for average and function scores crossed 0 and 100, respectively.RESULTS:
nâ=â981 responses were recorded, including nâ=â675 complete surveys. Test-retest reliability was generally fair to excellent, depending on function and scale. MDC95 values generally indicated scale responsiveness. Ceiling and floor effects were noted infrequently for specific functions.CONCLUSION:
The PAQ is valid, reliable, and sensitive. Additional research may explore measurement properties involving functions that were infrequently selected in this sample.Keywords
Full text:
Available
Collection:
International databases
Database:
MEDLINE
Main subject:
Activities of Daily Living
/
COVID-19
Type of study:
Observational study
/
Prognostic study
/
Randomized controlled trials
Topics:
Long Covid
Limits:
Humans
Language:
English
Journal:
Work
Journal subject:
Occupational Medicine
Year:
2023
Document Type:
Article
Affiliation country:
WOR-220553
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