Pims-Ts: The Psychological Needs of Families Admitted to Intensive Care

ABSTRACT

Background Paediatric Inflammatory Multisystem Syndrome (PIMS-TS) is a rare inflammatory condition affecting children and young people (CYP) weeks after infection with the COVID-19 virus. The aim of this study was to understand the potential psychological needs of these families. Methods PIMS-TS patients and their parents admitted to the hospital between April 2020 and May 2021 were reviewed by a psychologist 6-8 weeks post discharge as part of their clinical care. Young people over the age of 7 were asked to complete 2 measures for psychological distress and PTSD symptoms (CRIES-13 and PIED) and their parent/carer completed a measure of PTSD symptoms (IES-R). Ethical approval was not required for this study. Results 118 CYP and parents/carers who were admitted to GOSH were screened 6-8 weeks post discharge. 85 of the 118 CYP were aged 8 or over. 76.8% (n=91) of parents/carers completed the IES-R 78% (n=66) of CYPs completed the PIED and CRIES. 15% (n=10) of CYPs scores on the PIED suggested they were at risk of anxiety and depression. 24% (n=16) of CYPs reported clinically significant difficulties for PTSD on the CRIES-13 placing them in high probability of for a diagnosis of PTSD. 35% of parents/carers met the threshold for clinical concern on IES-R with 23% (n=21) scoring in the range for a likely diagnosis of PTSD. Discussion The findings of both the self-report screening questionnaires, indicate that significant number for CYP and their parent/carers are at risk of developing symptoms of psychological distress and trauma in 6-8 week period post discharge after PIMS-TS admission. Conclusion The result of this study clearly show identification of high levels of trauma and emotional distress for the CYP and their parents and carers and a potential need for ongoing psychological support to be provided as part of ongoing care.