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Implementation of Virtual Fontan Heart Camps During a Pandemic.
Tham, Edythe B; Harake, Danielle E; Lin, Lily Q; Du, Katie J; Harris, Lucy E; Williams, Elina; Ash, Alanna L; Escudero, Carolina A.
  • Tham EB; Division of Pediatric Cardiology, Stollery Children's Hospital & Mazankowski Alberta Heart Institute, University of Alberta, Edmonton, Canada.
  • Harake DE; The Permanente Medical Group, Roseville, CA, USA.
  • Lin LQ; Division of Pediatric Cardiology, Stollery Children's Hospital & Mazankowski Alberta Heart Institute, University of Alberta, Edmonton, Canada.
  • Du KJ; Division of Pediatric Cardiology, Stollery Children's Hospital & Mazankowski Alberta Heart Institute, University of Alberta, Edmonton, Canada.
  • Harris LE; Division of Pediatric Cardiology, Stollery Children's Hospital & Mazankowski Alberta Heart Institute, University of Alberta, Edmonton, Canada.
  • Williams E; Western Canadian Children's Heart Network, Alberta Health Services, Alberta, Canada.
  • Ash AL; Division of Pediatric Cardiology, Stollery Children's Hospital & Mazankowski Alberta Heart Institute, University of Alberta, Edmonton, Canada.
  • Escudero CA; Division of Pediatric Cardiology, Stollery Children's Hospital & Mazankowski Alberta Heart Institute, University of Alberta, Edmonton, Canada.
World J Pediatr Congenit Heart Surg ; 14(1): 63-69, 2023 01.
Article in English | MEDLINE | ID: covidwho-2283886
ABSTRACT

BACKGROUND:

Children with a Fontan operation represent a unique form of congenital heart disease (CHD) that requires multiple cardiac surgeries and procedures with an uncertain long-term outcome. Given the rarity of the types of CHD that require this procedure, many children with a Fontan do not know any others like them.

METHODS:

With the cancelation of medically supervised heart camps due to the COVID-19 pandemic, we have organized several physician-led virtual day camps for children with a Fontan operation to connect with others in their province and across Canada. The aim of this study was to describe the implementation and evaluation of these camps via the use of an anonymous online survey immediately after the event and reminders on days 2 and 4 postevent.

RESULTS:

Fifty-one children have participated in at least 1 of our camps. Registration data showed that 70% of participants did not know anyone else with a Fontan. Postcamp evaluations showed that 86% to 94% learned something new about their heart and 95% to 100% felt more connected to other children like them.

CONCLUSION:

We have demonstrated the implementation of a virtual heart camp to expand the support network for children with a Fontan. These experiences may help to promote healthy psychosocial adjustments through inclusion and relatedness.
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Full text: Available Collection: International databases Database: MEDLINE Main subject: Fontan Procedure / COVID-19 Type of study: Experimental Studies / Observational study / Prognostic study / Qualitative research Limits: Child / Humans Country/Region as subject: North America Language: English Journal: World J Pediatr Congenit Heart Surg Year: 2023 Document Type: Article Affiliation country: 21501351221127289

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Full text: Available Collection: International databases Database: MEDLINE Main subject: Fontan Procedure / COVID-19 Type of study: Experimental Studies / Observational study / Prognostic study / Qualitative research Limits: Child / Humans Country/Region as subject: North America Language: English Journal: World J Pediatr Congenit Heart Surg Year: 2023 Document Type: Article Affiliation country: 21501351221127289