Proceedings of the 6th National Patient Reported Outcome Measures (PROMs) Annual Conference

ABSTRACT

The proceedings contain 47 papers. The topics discussed include long COVID rehabilitation services, Cardiff and Vale and Cwm Taf Morgannwg University health boards social return on investment;the clinical meaning of family reported outcome measure (FROM-16) scores translational research to support holistic clinical practice;patient-centered outcome measure design: the perspectives and preferences of children and young people with life-limiting or life-threatening conditions;co-creation of a patient reported outcome measure for older people with frailty and acute care needs (PROM-OPAC);PROMs coming of age in lymphoedema services in Wales;ForMi-person-centered planning and outcomes recording app;true colors online mood monitoring in the bipolar disorder research network (BDRN) research program challenges, benefits and importance of personalization;patient reported outcome measures for rheumatoid arthritis disease activity using Rasch measurement theory to achieve more meaningful measurement;developing a roadmap towards national collection of electronic patient-reported outcomes for people with chronic kidney disease in the UK;and measuring bereavement support needs in people bereaved during Covid-19;the adaptation and development of a bereavement support needs scale.