Addressing loneliness and dietary needs during the COVID-19 pandemic: experiences of people living with HIV receiving support from a small HIV support organisation

ABSTRACT

Background: The Voluntary and Community Sector (VCS) is a vital partner in delivering care and support needs enabling vulnerable people to live fulfilling, independent lives;helping them maintain good health and wellbeing. People living with HIV are disproportionately impacted by poverty, financial instability, stigma and discrimination, all of which were exacerbated during the COVID-19 pandemic. Pre-pandemic, this small HIV support organisation (part of the VCS) provided community, food, friendship and peer-support for people living with or affected by HIV, primarily via a weekly lunch club and monthly supper. This qualitative impact study explored clients' experiences of the change in service provision (eg food collection, doorstep food delivery, and companionship telephone calls) as the organisation adapted to members' needs during lockdowns and as restrictions altered. Method(s) Nineteen clients gave informed consent and participated in a facilitated in-person focus group. Two groups (n=10 and n=9) were held concurrently in June 2021 (after the second lockdown, but before all COVID restrictions were lifted). Focus groups lasted 60-90 minutes, with semi-structured interview question guides to structure discussions;they were recorded and transcribed verbatim. Deductive thematic analysis was conducted using a coding procedure to identify patterns between the groups and emerging themes. Result(s) The following themes relating to clients' experiences of the pandemic and their engagement with the organisation emerged from the focus groups * Pre-lockdown services * Loneliness * Regular food parcels * Telephone companionship calls * Value of non-judgemental space Pre-lockdown, participants valued peer support and sharing meals together. During the pandemic, some clients experienced food insecurities;some felt disconnected and socially isolated;some lost their jobs or retired. Clients trusted the organisation to keep them safe (eg social distancing), and the volunteers delivering food made them feel valued and connected to their peers. Telephone check-ins helped tackle loneliness and reassured those who were anxious or afraid. Conclusion(s) During the pandemic this organisation helped address stigma, food insecurities and social isolation experienced by people living with HIV. Participants appreciated the organisation's mission and commitment to people living with HIV, and how welcoming and supportive the service is.