Making the most of the first prenatal visit: The challenge of expanding prenatal genetic testing options and limited clinical encounter time.
Prenat Diagn
; 40(10): 1265-1271, 2020 09.
Article
in English
| MEDLINE | ID: covidwho-343193
ABSTRACT
OBJECTIVE:
Advances in prenatal genetics place additional challenges as patients must receive information about a growing array of screening and testing options. This raises concerns about how to achieve a shared decision-making process that prepares patients to make an informed decision about their choices about prenatal genetic screening and testing options, calling for a reconsideration of how healthcare providers approach the first prenatal visit.METHODS:
We conducted interviews with 40 pregnant women to identify components of decision-making regarding prenatal genetic screens and tests at this visit. Analysis was approached using grounded theory.RESULTS:
Participants brought distinct notions of risk to the visit, including skewed perceptions of baseline risk for a fetal genetic condition and the implications of screening and testing. Participants were very concerned about financial considerations associated with these options, ranking out-of-pocket costs on par with medical considerations. Participants noted diverging priorities at the first visit from those of their healthcare provider, leading to barriers to shared decision-making regarding screening and testing during this visit.CONCLUSION:
Research is needed to determine how to restructure the initiation of prenatal care in a way that best positions patients to make informed decisions about prenatal genetic screens and tests.
Full text:
Available
Collection:
International databases
Database:
MEDLINE
Main subject:
Prenatal Care
/
Genetic Testing
/
Decision Making
Type of study:
Diagnostic study
/
Prognostic study
/
Qualitative research
Country/Region as subject:
North America
Language:
English
Journal:
Prenat Diagn
Year:
2020
Document Type:
Article
Affiliation country:
Pd.5752
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