COVID-19 in people with multiple sclerosis: A global data sharing initiative.
Mult Scler
; 26(10): 1157-1162, 2020 09.
Article
in English
| MEDLINE | ID: covidwho-646806
ABSTRACT
BACKGROUND:
We need high-quality data to assess the determinants for COVID-19 severity in people with MS (PwMS). Several studies have recently emerged but there is great benefit in aligning data collection efforts at a global scale.OBJECTIVES:
Our mission is to scale-up COVID-19 data collection efforts and provide the MS community with data-driven insights as soon as possible.METHODS:
Numerous stakeholders were brought together. Small dedicated interdisciplinary task forces were created to speed-up the formulation of the study design and work plan. First step was to agree upon a COVID-19 MS core data set. Second, we worked on providing a user-friendly and rapid pipeline to share COVID-19 data at a global scale.RESULTS:
The COVID-19 MS core data set was agreed within 48 hours. To date, 23 data collection partners are involved and the first data imports have been performed successfully. Data processing and analysis is an on-going process.CONCLUSIONS:
We reached a consensus on a core data set and established data sharing processes with multiple partners to address an urgent need for information to guide clinical practice. First results show that partners are motivated to share data to attain the ultimate joint goal better understand the effect of COVID-19 in PwMS.Keywords
Full text:
Available
Collection:
International databases
Database:
MEDLINE
Main subject:
Pneumonia, Viral
/
Registries
/
Coronavirus Infections
/
Multiple Sclerosis
Type of study:
Prognostic study
Topics:
Long Covid
Limits:
Humans
Language:
English
Journal:
Mult Scler
Journal subject:
Neurology
Year:
2020
Document Type:
Article
Affiliation country:
1352458520941485
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