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Validation of the Italian version of self-administered ALSFRS-R scale.
Manera, Umberto; Cabras, Sara; Daviddi, Margherita; Vasta, Rosario; Torrieri, Maria Claudia; Palumbo, Francesca; Bombaci, Alessandro; Grassano, Maurizio; Solero, Luca; Peotta, Laura; Iazzolino, Barbara; Canosa, Antonio; Calvo, Andrea; Chiò, Adriano; Moglia, Cristina.
  • Manera U; ALS Centre, Department of Neuroscience "Rita Levi Montalcini", University of Torino, Turin, Italy and.
  • Cabras S; ALS Centre, Department of Neuroscience "Rita Levi Montalcini", University of Torino, Turin, Italy and.
  • Daviddi M; ALS Centre, Department of Neuroscience "Rita Levi Montalcini", University of Torino, Turin, Italy and.
  • Vasta R; ALS Centre, Department of Neuroscience "Rita Levi Montalcini", University of Torino, Turin, Italy and.
  • Torrieri MC; ALS Centre, Department of Neuroscience "Rita Levi Montalcini", University of Torino, Turin, Italy and.
  • Palumbo F; ALS Centre, Department of Neuroscience "Rita Levi Montalcini", University of Torino, Turin, Italy and.
  • Bombaci A; ALS Centre, Department of Neuroscience "Rita Levi Montalcini", University of Torino, Turin, Italy and.
  • Grassano M; ALS Centre, Department of Neuroscience "Rita Levi Montalcini", University of Torino, Turin, Italy and.
  • Solero L; ALS Centre, Department of Neuroscience "Rita Levi Montalcini", University of Torino, Turin, Italy and.
  • Peotta L; ALS Centre, Department of Neuroscience "Rita Levi Montalcini", University of Torino, Turin, Italy and.
  • Iazzolino B; ALS Centre, Department of Neuroscience "Rita Levi Montalcini", University of Torino, Turin, Italy and.
  • Canosa A; ALS Centre, Department of Neuroscience "Rita Levi Montalcini", University of Torino, Turin, Italy and.
  • Calvo A; SC Neurologia 1U, AOU Città della Salute e della Scienza of Torino, Turin, Italy.
  • Chiò A; ALS Centre, Department of Neuroscience "Rita Levi Montalcini", University of Torino, Turin, Italy and.
  • Moglia C; SC Neurologia 1U, AOU Città della Salute e della Scienza of Torino, Turin, Italy.
Amyotroph Lateral Scler Frontotemporal Degener ; 22(1-2): 151-153, 2021 02.
Article in English | MEDLINE | ID: covidwho-733435
ABSTRACT

OBJECTIVES:

To validate and assess the reliability of the Italian version of self-administered ALSFRS-R, considering patients' clinical and cognitive features and caregiver's help.

Methods:

During the COVID-19 pandemic, by analyzing the results of 70 paired self-administered vs standard telephone-administered ALSFRS-R, we calculated overall score, single item scores, ALSFRS-R domain scores, King's and MiToS stage inter-rater agreement and reliability using different validated methods. We created the Italian version of self-administered ALSFRS-R following ENCALS recommendation.

Results:

Correlation between the two scales was 0.94 and no systematic directional bias was found. The intraclass correlation coefficient (ICC) was very high (>0.90) for the vast majority of the considered classification criteria, especially King's total score (0.96) and MiToS score (0.94). A higher ICC was found when the patients answered the questionnaire with the caregiver's help (0.95).

Conclusions:

Online self-administered ALSFRS-R scale is a valid tool to stratify ALS patients into clinical stages and to implement telemedicine monitoring.
Subject(s)
Keywords

Full text: Available Collection: International databases Database: MEDLINE Main subject: Severity of Illness Index / Activities of Daily Living / Surveys and Questionnaires / Telemedicine / COVID-19 / Amyotrophic Lateral Sclerosis Type of study: Cohort study / Diagnostic study / Observational study / Prognostic study / Qualitative research / Randomized controlled trials / Systematic review/Meta Analysis Limits: Aged / Female / Humans / Male / Middle aged Country/Region as subject: Europa Language: English Journal: Amyotroph Lateral Scler Frontotemporal Degener Year: 2021 Document Type: Article

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Full text: Available Collection: International databases Database: MEDLINE Main subject: Severity of Illness Index / Activities of Daily Living / Surveys and Questionnaires / Telemedicine / COVID-19 / Amyotrophic Lateral Sclerosis Type of study: Cohort study / Diagnostic study / Observational study / Prognostic study / Qualitative research / Randomized controlled trials / Systematic review/Meta Analysis Limits: Aged / Female / Humans / Male / Middle aged Country/Region as subject: Europa Language: English Journal: Amyotroph Lateral Scler Frontotemporal Degener Year: 2021 Document Type: Article