Validation of the Italian version of self-administered ALSFRS-R scale.
Amyotroph Lateral Scler Frontotemporal Degener
; 22(1-2): 151-153, 2021 02.
Article
in English
| MEDLINE | ID: covidwho-733435
ABSTRACT
OBJECTIVES:
To validate and assess the reliability of the Italian version of self-administered ALSFRS-R, considering patients' clinical and cognitive features and caregiver's help.Methods:
During the COVID-19 pandemic, by analyzing the results of 70 paired self-administered vs standard telephone-administered ALSFRS-R, we calculated overall score, single item scores, ALSFRS-R domain scores, King's and MiToS stage inter-rater agreement and reliability using different validated methods. We created the Italian version of self-administered ALSFRS-R following ENCALS recommendation.Results:
Correlation between the two scales was 0.94 and no systematic directional bias was found. The intraclass correlation coefficient (ICC) was very high (>0.90) for the vast majority of the considered classification criteria, especially King's total score (0.96) and MiToS score (0.94). A higher ICC was found when the patients answered the questionnaire with the caregiver's help (0.95).Conclusions:
Online self-administered ALSFRS-R scale is a valid tool to stratify ALS patients into clinical stages and to implement telemedicine monitoring.Keywords
Full text:
Available
Collection:
International databases
Database:
MEDLINE
Main subject:
Severity of Illness Index
/
Activities of Daily Living
/
Surveys and Questionnaires
/
Telemedicine
/
COVID-19
/
Amyotrophic Lateral Sclerosis
Type of study:
Cohort study
/
Diagnostic study
/
Observational study
/
Prognostic study
/
Qualitative research
/
Randomized controlled trials
/
Systematic review/Meta Analysis
Limits:
Aged
/
Female
/
Humans
/
Male
/
Middle aged
Country/Region as subject:
Europa
Language:
English
Journal:
Amyotroph Lateral Scler Frontotemporal Degener
Year:
2021
Document Type:
Article
Similar
MEDLINE
...
LILACS
LIS