Providing high-quality care remotely to patients with rare bone diseases during COVID-19 pandemic.
Orphanet J Rare Dis
; 15(1): 228, 2020 08 31.
Article
in English
| MEDLINE | ID: covidwho-736401
ABSTRACT
During the COVID-19 outbreak, the European Reference Network on Rare Bone Diseases (ERN BOND) coordination team and Italian rare bone diseases healthcare professionals created the "COVID-19 Helpline for Rare Bone Diseases" in an attempt to provide high-quality information and expertise on rare bone diseases remotely to patients and healthcare professionals. The present position statement describes the key characteristics of the Helpline initiative, along with the main aspects and topics that recurrently emerged as central for rare bone diseases patients and professionals. The main topics highlighted are general recommendations, pulmonary complications, drug treatment, trauma, pregnancy, children and elderly people, and patient associations role. The successful experience of the "COVID-19 Helpline for Rare Bone Diseases" launched in Italy could serve as a primer of gold-standard remote care for rare bone diseases for the other European countries and globally. Furthermore, similar COVID-19 helplines could be considered and applied for other rare diseases in order to implement remote patients' care.
Keywords
Full text:
Available
Collection:
International databases
Database:
MEDLINE
Main subject:
Pneumonia, Viral
/
Bone Diseases
/
Coronavirus Infections
/
Remote Consultation
/
Rare Diseases
/
Betacoronavirus
Topics:
Long Covid
Limits:
Aged
/
Child
/
Female
/
Humans
/
Pregnancy
Language:
English
Journal:
Orphanet J Rare Dis
Journal subject:
Medicine
Year:
2020
Document Type:
Article
Affiliation country:
S13023-020-01513-6
Similar
MEDLINE
...
LILACS
LIS