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Decision-making for receiving paid home care for dementia in the time of COVID-19: a qualitative study.
Giebel, Clarissa; Hanna, Kerry; Cannon, Jacqueline; Eley, Ruth; Tetlow, Hilary; Gaughan, Anna; Komuravelli, Aravind; Shenton, Justine; Rogers, Carol; Butchard, Sarah; Callaghan, Steve; Limbert, Stan; Rajagopal, Manoj; Ward, Kym; Shaw, Lisa; Whittington, Rosie; Hughes, Mishca; Gabbay, Mark.
  • Giebel C; Department of Primary Care and Mental Health, University of Liverpool, Liverpool, UK. Clarissa.giebel@liverpool.ac.uk.
  • Hanna K; NIHR ARC NWC, Liverpool, UK. Clarissa.giebel@liverpool.ac.uk.
  • Cannon J; Waterhouse Building B Block, University of Liverpool, Brownlow Street, Liverpool, L69 3GL, UK. Clarissa.giebel@liverpool.ac.uk.
  • Eley R; Department of Primary Care and Mental Health, University of Liverpool, Liverpool, UK.
  • Tetlow H; Lewy Body Society, Wigan, UK.
  • Gaughan A; Liverpool Dementia Action Alliance, Liverpool, UK.
  • Komuravelli A; SURF Liverpool, Liverpool, UK.
  • Shenton J; Together in Dementia Everyday, Liverpool, UK.
  • Rogers C; North West Boroughs NHS Trust, Warrington, UK.
  • Butchard S; Sefton Older People's Forum, Sefton, UK.
  • Callaghan S; National Museums Liverpool, Liverpool, UK.
  • Limbert S; Department of Primary Care and Mental Health, University of Liverpool, Liverpool, UK.
  • Rajagopal M; Mersey Care NHS Trust, Liverpool, UK.
  • Ward K; EQE Health, Liverpool, UK.
  • Shaw L; NIHR ARC NWC, Liverpool, UK.
  • Whittington R; Lancashire and South Cumbria NHS Trust, Preston, UK.
  • Hughes M; The Brain Charity, Liverpool, UK.
  • Gabbay M; Department of, Liverpool, UK.
BMC Geriatr ; 20(1): 333, 2020 09 09.
Article in English | MEDLINE | ID: covidwho-751238
Semantic information from SemMedBD (by NLM)
1. Home Care Services ADMINISTERED_TO Participant
Subject
Home Care Services
Predicate
ADMINISTERED_TO
Object
Participant
2. IMPACT gene ASSOCIATED_WITH Dementia
Subject
IMPACT gene
Predicate
ASSOCIATED_WITH
Object
Dementia
3. Home Care Services ADMINISTERED_TO Participant
Subject
Home Care Services
Predicate
ADMINISTERED_TO
Object
Participant
4. IMPACT gene ASSOCIATED_WITH Dementia
Subject
IMPACT gene
Predicate
ASSOCIATED_WITH
Object
Dementia
ABSTRACT

BACKGROUND:

The lockdown imposed in the UK on the 23rd of March and associated public health measures of social distancing are likely to have had a great impact on care provision. The aim of this study was to explore the decision-making processes of continued paid home care support for dementia in the time of COVID-19.

METHODS:

Unpaid carers caring for a person living with dementia (PLWD) who were accessing paid home care before COVID-19 and residing in the UK were eligible to take part. Participants were interviewed over the phone and asked about their experiences of using paid home care services before and since COVID-19, and their decision-making processes of accessing paid home care since the outbreak and public health restrictions.

RESULTS:

Fifteen unpaid carers, who were also accessing paid care support for the PLWD before COVID-19, were included in the analysis. Thematic analysis identified three overarching themes (1) Risk; (2) Making difficult choices and risk management; and (3) Implications for unpaid carers. Many unpaid carers decided to discontinue paid carers entering the home due to the risk of infection, resulting in unpaid carers having to pick up the care hours to support the person living with dementia.

CONCLUSIONS:

This is the first study to report on the impact of COVID-19 on paid home care changes in dementia. Findings raise implications for providing better Personal Protective Equipment for paid carers, and to support unpaid carers better in their roles, with the pandemic likely to stay in place for the foreseeable future.
Subject(s)
Keywords

Full text: Available Collection: International databases Database: MEDLINE Main subject: Pneumonia, Viral / Caregivers / Coronavirus Infections / Dementia / Betacoronavirus / Health Services Accessibility / Home Care Services Type of study: Prognostic study / Qualitative research Limits: Aged / Female / Humans / Male / Middle aged Language: English Journal: BMC Geriatr Journal subject: Geriatrics Year: 2020 Document Type: Article Affiliation country: S12877-020-01719-0

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Full text: Available Collection: International databases Database: MEDLINE Main subject: Pneumonia, Viral / Caregivers / Coronavirus Infections / Dementia / Betacoronavirus / Health Services Accessibility / Home Care Services Type of study: Prognostic study / Qualitative research Limits: Aged / Female / Humans / Male / Middle aged Language: English Journal: BMC Geriatr Journal subject: Geriatrics Year: 2020 Document Type: Article Affiliation country: S12877-020-01719-0