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Facing the Ethical Challenges: Consumer Involvement in COVID-19 Pandemic Research.
Straiton, N; McKenzie, A; Bowden, J; Nichol, A; Murphy, R; Snelling, T; Zalcberg, J; Clements, J; Stubbs, J; Economides, A; Kent, D; Ansell, J; Symons, T.
  • Straiton N; Australian Clinical Trials Alliance, Suite 1, Level 2, 24 Albert Road, Melbourne, VIC, 3205, Australia. nicola_straiton@hotmail.com.
  • McKenzie A; Telethon Kids Institute, Consumer Engagement, Perth, Australia.
  • Bowden J; AccessCR, Sydney, Australia.
  • Nichol A; Monash University, Melbourne, Australia.
  • Murphy R; St. Vincent's University Hospital, Dublin, Ireland.
  • Snelling T; University of Auckland, Auckland, New Zealand.
  • Zalcberg J; University of Sydney, Faculty of Medicine and Health, Sydney, Australia.
  • Clements J; Monash University, Cancer Research, Melbourne, Australia.
  • Stubbs J; Australian Clinical Trials Alliance, Consumer Engagement, Melbourne, Australia.
  • Economides A; Australian Clinical Trials Alliance, Consumer Engagement, Melbourne, Australia.
  • Kent D; Brain and Mind Centre, University of Sydney, Sydney, Australia.
  • Ansell J; Australian Clinical Trials Alliance, Consumer Engagement, Melbourne, Australia.
  • Symons T; Consumers Health Forum, Canberra, Australia.
J Bioeth Inq ; 17(4): 743-748, 2020 12.
Article in English | MEDLINE | ID: covidwho-917159
ABSTRACT
Consumer involvement in clinical research is an essential component of a comprehensive response during emergent health challenges. During the COVID-19 pandemic, the moderation of research policies and regulation to facilitate research may raise ethical issues. Meaningful, diverse consumer involvement can help to identify practical approaches to prioritize, design, and conduct rapidly developed clinical research amid current events. Consumer involvement might also elucidate the acceptability of flexible ethics review approaches that aim to protect participants whilst being sensitive to the challenging context in which research is taking place. This article describes the main ethical challenges arising from pandemic research and how involving consumers and the community could enable resolution of such issues.
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Full text: Available Collection: International databases Database: MEDLINE Main subject: Community Participation / Ethics, Research / COVID-19 Type of study: Prognostic study Limits: Humans Language: English Journal: J Bioeth Inq Year: 2020 Document Type: Article Affiliation country: S11673-020-10060-5

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Full text: Available Collection: International databases Database: MEDLINE Main subject: Community Participation / Ethics, Research / COVID-19 Type of study: Prognostic study Limits: Humans Language: English Journal: J Bioeth Inq Year: 2020 Document Type: Article Affiliation country: S11673-020-10060-5