Experiences and Needs of Caregivers of Persons With Dementia in India During the COVID-19 Pandemic-A Qualitative Study.
Am J Geriatr Psychiatry
; 28(11): 1185-1194, 2020 11.
Article
in English
| MEDLINE | ID: covidwho-922025
ABSTRACT
OBJECTIVE:
To describe the experiences and needs of caregivers of persons with dementia during the COVID-19 pandemic and lockdown in a city in India.DESIGN:
Qualitative study using a telephonic semistructured interview.SETTING:
A specialist geriatric outpatient mental health service based in a nongovernmental organization in Chennai, India.PARTICIPANTS:
A purposive sampling of family members of persons with dementia registered in the database and seen within the previous 6 months.RESULTS:
Thirty-one caregivers participated. Thematic analysis of the data showed two sets of issues that the caregivers of persons with dementia faced in their experiences during the pandemic. The first set was unique to the caregivers that directly related to their caregiving role, while the second set did not relate directly to their caregiving role. These two sets also appeared to have a two-way interaction influencing each other. These issues generated needs, some of which required immediate support while others required longer-term support. The caregivers suggested several methods, such as use of video-consultations, telephone-based support and clinic-based in-person visits to meet their needs. They also wanted more services postpandemic.CONCLUSION:
Caregivers of persons with dementia had multiple needs during the pandemic. Supporting them during these times require a pragmatic multilayered approach. Systemic changes, policies and frameworks, increased awareness, use of technology, and better access to health are necessary.Keywords
Full text:
Available
Collection:
International databases
Database:
MEDLINE
Main subject:
Pneumonia, Viral
/
Quality of Life
/
Caregivers
/
Telemedicine
/
Coronavirus Infections
/
Dementia
/
Videoconferencing
/
Pandemics
Type of study:
Observational study
/
Qualitative research
Limits:
Aged
/
Female
/
Humans
/
Male
Country/Region as subject:
Asia
Language:
English
Journal:
Am J Geriatr Psychiatry
Journal subject:
Geriatrics
/
Psychiatry
Year:
2020
Document Type:
Article
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