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1.
'High hopes for treatment': Australian stakeholder perspectives of the clinical translation of advanced neurotherapeutics for rare neurological diseases.
Health Expect
; 27(3): e14063, 2024 Jun.
Artículo
en Inglés
| MEDLINE | ID: mdl-38711219
2.
'Advocacy groups are the connectors': Experiences and contributions of rare disease patient organization leaders in advanced neurotherapeutics.
Health Expect
; 25(6): 3175-3191, 2022 12.
Artículo
en Inglés
| MEDLINE | ID: mdl-36307981
3.
The involvement of rare disease patient organisations in therapeutic innovation across rare paediatric neurological conditions: a narrative review.
Orphanet J Rare Dis
; 17(1): 167, 2022 04 18.
Artículo
en Inglés
| MEDLINE | ID: mdl-35436886
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