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1.
Application of the RE-AIM framework to evaluate the implementation of telehealth pulmonary rehabilitation in a randomized controlled trial among African-American and Hispanic patients with advanced stage Chronic Obstructive Pulmonary Disease.
BMC Health Serv Res
; 23(1): 515, 2023 May 23.
Artículo
en Inglés
| MEDLINE | ID: mdl-37218000
2.
Prognostic models for COVID-19 needed updating to warrant transportability over time and space.
BMC Med
; 20(1): 456, 2022 11 23.
Artículo
en Inglés
| MEDLINE | ID: mdl-36424619
3.
Remote endpoints for clinical trials in cystic fibrosis: Report from the U.S. CF foundation remote endpoints task force.
J Cyst Fibros
; 2024 Feb 29.
Artículo
en Inglés
| MEDLINE | ID: mdl-38429150
4.
Addressing Symptom Burden and Palliative Care Needs in Cystic Fibrosis: A Narrative Review of the Literature.
Life (Basel)
; 13(8)2023 Jul 25.
Artículo
en Inglés
| MEDLINE | ID: mdl-37629478
5.
US and Dutch Perspectives on the Use of COVID-19 Clinical Prediction Models: Findings from a Qualitative Analysis.
Med Decis Making
; 43(4): 445-460, 2023 05.
Artículo
en Inglés
| MEDLINE | ID: mdl-36760135
6.
Development of a Cystic Fibrosis Primary Palliative Care Intervention: Qualitative Analysis of Patient and Family Caregiver Preferences.
J Patient Exp
; 10: 23743735231161486, 2023.
Artículo
en Inglés
| MEDLINE | ID: mdl-36936380
7.
Usability preferences of people living with cystic fibrosis about a lung transplant education website.
AMIA Annu Symp Proc
; 2022: 922-931, 2022.
Artículo
en Inglés
| MEDLINE | ID: mdl-37128444
8.
Developing a Decision Aid to Facilitate Informed Decision Making About Invasive Mechanical Ventilation and Lung Transplantation Among Adults With Cystic Fibrosis: Usability Testing.
JMIR Hum Factors
; 8(2): e21270, 2021 Apr 14.
Artículo
en Inglés
| MEDLINE | ID: mdl-33851921
9.
Models of Palliative Care Delivery for Individuals with Cystic Fibrosis: Cystic Fibrosis Foundation Evidence-Informed Consensus Guidelines.
J Palliat Med
; 24(1): 18-30, 2021 01.
Artículo
en Inglés
| MEDLINE | ID: mdl-32936045
10.
Humanizing the ICU Patient: A Qualitative Exploration of Behaviors Experienced by Patients, Caregivers, and ICU Staff.
Crit Care Explor
; 3(6): e0463, 2021 Jun.
Artículo
en Inglés
| MEDLINE | ID: mdl-34151284
11.
Assessing Practices, Beliefs, and Attitudes about Palliative Care among People with Cystic Fibrosis, Their Caregivers, and Clinicians: Results of a Content Analysis.
J Palliat Med
; 24(11): 1650-1656, 2021 11.
Artículo
en Inglés
| MEDLINE | ID: mdl-33885355
12.
Palliative care skills in CF: Perspectives of adults with CF, caregivers, and CF care team members.
Pediatr Pulmonol
; 55(8): 2017-2024, 2020 08.
Artículo
en Inglés
| MEDLINE | ID: mdl-32384215
13.
Palliative Care Needs of Individuals with Cystic Fibrosis: Perspectives of Multiple Stakeholders.
J Palliat Med
; 23(7): 957-963, 2020 07.
Artículo
en Inglés
| MEDLINE | ID: mdl-32023421
14.
Does Calculated Prognostic Estimation Lead to Different Outcomes Compared With Experience-Based Prognostication in the ICU? A Systematic Review.
Crit Care Explor
; 1(2): e0004, 2019 Feb.
Artículo
en Inglés
| MEDLINE | ID: mdl-32166250
15.
Using qualitative methods to inform the design of a decision aid for people with advanced cystic fibrosis: The InformedChoices CF patient decision aid.
Patient Educ Couns
; 102(11): 1985-1990, 2019 11.
Artículo
en Inglés
| MEDLINE | ID: mdl-31248766
16.
It takes two to tango: A dyadic approach to understanding the medication dialogue in patient-provider relationships.
Patient Educ Couns
; 101(8): 1500-1505, 2018 08.
Artículo
en Inglés
| MEDLINE | ID: mdl-29478882
17.
A Decision Aid to Support Shared Decision Making About Mechanical Ventilation in Severe Chronic Obstructive Pulmonary Disease Patients (InformedTogether): Feasibility Study.
J Particip Med
; 10(2): e7, 2018.
Artículo
en Inglés
| MEDLINE | ID: mdl-32461812
18.
Other Ways of Knowing.
Med Decis Making
; 37(3): 216-229, 2017 04.
Artículo
en Inglés
| MEDLINE | ID: mdl-28061041
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