Detalles de la búsqueda
1.
Transition to adulthood and transfer to adult care of adolescents with congenital heart disease: a global consensus statement of the ESC Association of Cardiovascular Nursing and Allied Professions (ACNAP), the ESC Working Group on Adult Congenital Heart Disease (WG ACHD), the Association for European Paediatric and Congenital Cardiology (AEPC), the Pan-African Society of Cardiology (PASCAR), the Asia-Pacific Pediatric Cardiac Society (APPCS), the Inter-American Society of Cardiology (IASC), the Cardiac Society of Australia and New Zealand (CSANZ), the International Society for Adult Congenital Heart Disease (ISACHD), the World Heart Federation (WHF), the European Congenital Heart Disease Organisation (ECHDO), and the Global Alliance for Rheumatic and Congenital Hearts (Global ARCH).
Eur Heart J
; 42(41): 4213-4223, 2021 11 01.
Artículo
en Inglés
| MEDLINE | ID: mdl-34198319
2.
Monitoring the Evolution of Asynchrony between Mean Arterial Pressure and Mean Cerebral Blood Flow via Cross-Entropy Methods.
Entropy (Basel)
; 24(1)2022 Jan 02.
Artículo
en Inglés
| MEDLINE | ID: mdl-35052106
3.
Neurocognitive assessment and DNA sequencing expand the phenotype and genotype spectrum of Alström syndrome.
Am J Med Genet A
; 185(3): 732-742, 2021 03.
Artículo
en Inglés
| MEDLINE | ID: mdl-33410256
4.
Phenotypes of adults with congenital heart disease around the globe: a cluster analysis.
Health Qual Life Outcomes
; 19(1): 53, 2021 Feb 10.
Artículo
en Inglés
| MEDLINE | ID: mdl-33568120
5.
Healthcare system inputs and patient-reported outcomes: a study in adults with congenital heart defect from 15 countries.
BMC Health Serv Res
; 20(1): 496, 2020 Jun 03.
Artículo
en Inglés
| MEDLINE | ID: mdl-32493367
6.
Multidisciplinary family-centred psychosocial care for patients with CHD: consensus recommendations from the AEPC Psychosocial Working Group.
Cardiol Young
; 28(2): 192-198, 2018 Feb.
Artículo
en Inglés
| MEDLINE | ID: mdl-28889827
7.
Best practice in psychological activities in cardiovascular prevention and rehabilitation: Position Paper.
Monaldi Arch Chest Dis
; 88(2): 966, 2018 Jul 02.
Artículo
en Inglés
| MEDLINE | ID: mdl-29962189
8.
Regional variation in quality of life in patients with a Fontan circulation: A multinational perspective.
Am Heart J
; 193: 55-62, 2017 Nov.
Artículo
en Inglés
| MEDLINE | ID: mdl-29129255
9.
Red Flags for Maltese Adults with Congenital Heart Disease: Poorer Dental Care and Less Sports Participation Compared to Other European Patients-An APPROACH-IS Substudy.
Pediatr Cardiol
; 38(5): 965-973, 2017 Jun.
Artículo
en Inglés
| MEDLINE | ID: mdl-28341902
10.
Cognitive and psycholologic considerations in pediatric heart failure.
J Card Fail
; 20(10): 782-785, 2014 Oct.
Artículo
en Inglés
| MEDLINE | ID: mdl-25038263
11.
The impact of actual and perceived disease severity on pre-operative psychological well-being and illness behaviour in adult congenital heart disease patients.
Cardiol Young
; 24(2): 275-82, 2014 Apr.
Artículo
en Inglés
| MEDLINE | ID: mdl-23534397
12.
Are disease-specific patient-reported outcomes measures (PROMs) used in cardiogenetics? A systematic review.
Eur J Hum Genet
; 32(6): 607-618, 2024 Jun.
Artículo
en Inglés
| MEDLINE | ID: mdl-38097768
13.
Anxiety and Depression in Adults With Congenital Heart Disease.
J Am Coll Cardiol
; 83(3): 430-441, 2024 Jan 23.
Artículo
en Inglés
| MEDLINE | ID: mdl-38233017
14.
Frailty and Cognitive Function in Middle-Aged and Older Adults With Congenital Heart Disease.
J Am Coll Cardiol
; 83(12): 1149-1159, 2024 Mar 26.
Artículo
en Inglés
| MEDLINE | ID: mdl-38508848
15.
Multidisciplinary family-centred psychosocial care for patients with CHD: consensus recommendations from the AEPC Psychosocial Working Group - ERRATUM.
Cardiol Young
; 28(2): 199, 2018 02.
Artículo
en Inglés
| MEDLINE | ID: mdl-29173219
16.
COVID-19 Vaccine Hesitancy in Italian Adults with Marfan Syndrome: Insights from a Secondary Analysis of a Cross-Sectional Study.
Vaccines (Basel)
; 11(4)2023 Mar 26.
Artículo
en Inglés
| MEDLINE | ID: mdl-37112646
17.
Marfan Syndrome: Enhanced Diagnostic Tools and Follow-up Management Strategies.
Diagnostics (Basel)
; 13(13)2023 Jul 05.
Artículo
en Inglés
| MEDLINE | ID: mdl-37443678
18.
Characterization of cardiovascular and cerebrovascular controls via spectral causality analysis in patients undergoing surgical aortic valve replacement during a three-month follow-up.
Physiol Meas
; 44(9)2023 Sep 29.
Artículo
en Inglés
| MEDLINE | ID: mdl-37703899
19.
Patient-reported outcomes in the aging population of adults with congenital heart disease: results from APPROACH-IS.
Eur J Cardiovasc Nurs
; 22(4): 339-344, 2023 05 25.
Artículo
en Inglés
| MEDLINE | ID: mdl-35901014
20.
Recommendations for developing effective and safe paediatric and congenital heart disease services in low-income and middle-income countries: a public health framework.
BMJ Glob Health
; 8(5)2023 05.
Artículo
en Inglés
| MEDLINE | ID: mdl-37142298