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1.
Standardising personalised diabetes care across European health settings: A person-centred outcome set agreed in a multinational Delphi study.
Diabet Med
; 41(5): e15259, 2024 May.
Artículo
en Inglés
| MEDLINE | ID: mdl-38017616
2.
Real-world treatment patterns of immunosuppressants in Adults with systemic lupus erythematosus: A claims database analysis in the United States.
Lupus
; 32(7): 815-826, 2023 Jun.
Artículo
en Inglés
| MEDLINE | ID: mdl-37249240
3.
Patient-reported disease impact of systemic lupus erythematosus with active joint symptoms: Results from the systemic lupus erythematosus-update survey.
Lupus
; 32(3): 342-351, 2023 Mar.
Artículo
en Inglés
| MEDLINE | ID: mdl-36541633
4.
Validation of the bowel urgency numeric rating scale in patients with Crohn's disease: results from a mixed methods study.
Qual Life Res
; 32(12): 3403-3415, 2023 Dec.
Artículo
en Inglés
| MEDLINE | ID: mdl-37540296
5.
The development of the ICIQ-UAB: A patient reported outcome measure for underactive bladder.
Neurourol Urodyn
; 38(3): 996-1004, 2019 03.
Artículo
en Inglés
| MEDLINE | ID: mdl-30801826
6.
Assessing Itch Severity: Content Validity and Psychometric Properties of a Patient-Reported Pruritus Numeric Rating Scale in Atopic Dermatitis.
Adv Ther
; 41(4): 1512-1525, 2024 Apr.
Artículo
en Inglés
| MEDLINE | ID: mdl-38363461
7.
Experience and measurement of fatigue in adults with Crohn's disease: results from qualitative interviews and a longitudinal 2-week daily diary pilot study.
J Patient Rep Outcomes
; 7(1): 75, 2023 07 20.
Artículo
en Inglés
| MEDLINE | ID: mdl-37470874
8.
Which diabetes specific patient reported outcomes should be measured in routine care? A systematic review to inform a core outcome set for adults with Type 1 and 2 diabetes mellitus: The European Health Outcomes Observatory (H2O) programme.
Patient Educ Couns
; 116: 107933, 2023 11.
Artículo
en Inglés
| MEDLINE | ID: mdl-37672919
9.
Psychometric evaluation of the Urgency NRS as a new patient-reported outcome measure for patients with ulcerative colitis.
J Patient Rep Outcomes
; 6(1): 114, 2022 Nov 05.
Artículo
en Inglés
| MEDLINE | ID: mdl-36334163
10.
Exploring Disease Remission and Bowel Urgency Severity Among Adults with Moderate to Severe Ulcerative Colitis: A Qualitative Study.
Patient Relat Outcome Meas
; 13: 287-300, 2022.
Artículo
en Inglés
| MEDLINE | ID: mdl-36582542
11.
A qualitative study to explore symptoms and impacts of pediatric and adolescent Crohn's disease from patient and caregiver perspective.
J Patient Rep Outcomes
; 5(1): 49, 2021 Jun 25.
Artículo
en Inglés
| MEDLINE | ID: mdl-34170423
12.
Patient Experiences, Satisfaction, and Expectations with Current Systemic Lupus Erythematosus Treatment: Results of the SLE-UPDATE Survey.
Rheumatol Ther
; 8(3): 1189-1205, 2021 Sep.
Artículo
en Inglés
| MEDLINE | ID: mdl-34164800
13.
Co-creation of practical "how-to guides" for patient engagement in key phases of medicines development-from theory to implementation.
Res Involv Engagem
; 7(1): 57, 2021 Aug 23.
Artículo
en Inglés
| MEDLINE | ID: mdl-34425911
14.
Qualitative research to explore the symptoms and impacts experienced by children with ulcerative colitis.
J Patient Rep Outcomes
; 4(1): 75, 2020 Sep 07.
Artículo
en Inglés
| MEDLINE | ID: mdl-32894366
15.
Patient's Perspective on Disease Burden, Remission Definition, and Symptoms Associated With Treatment Seeking: A Qualitative Study in Adult and Adolescent Patients With Crohn's Disease.
Crohns Colitis 360
; 2(2): otaa033, 2020 Apr.
Artículo
en Inglés
| MEDLINE | ID: mdl-36777302
16.
Co-creation of patient engagement quality guidance for medicines development: an international multistakeholder initiative.
BMJ Innov
; 5(1): 43-55, 2019 Jan.
Artículo
en Inglés
| MEDLINE | ID: mdl-31645992
17.
Patient Participation and the Use of Ehealth Tools for Pharmacoviligance.
Front Pharmacol
; 7: 90, 2016.
Artículo
en Inglés
| MEDLINE | ID: mdl-27148052
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