Detalles de la búsqueda
1.
Diagnosis, epilepsy treatment and supports for neurodevelopment in children with Dravet Syndrome: Caregiver reported experiences and needs.
Epilepsy Behav
; 151: 109603, 2024 Feb.
Artículo
en Inglés
| MEDLINE | ID: mdl-38168600
2.
Caregiver perceptions of the impact of Dravet syndrome on the family, current supports and hopes and fears for the future: A qualitative study.
Epilepsy Behav
; 156: 109790, 2024 Jul.
Artículo
en Inglés
| MEDLINE | ID: mdl-38692022
3.
Mortality rates, cause and risk factors in people with spina bifida, register-based study over five decades.
Acta Paediatr
; 2024 05 22.
Artículo
en Inglés
| MEDLINE | ID: mdl-38775408
4.
Linguistic and content validity of the Swedish version of the PedsQL™ gastrointestinal symptoms scales and symptoms module for paediatric patients.
Acta Paediatr
; 110(11): 3124-3130, 2021 Nov.
Artículo
en Inglés
| MEDLINE | ID: mdl-34390033
5.
Health-related quality of life among children, adolescents, and adults with bladder exstrophy-epispadias complex: a systematic review of the literature and recommendations for future research.
Qual Life Res
; 28(6): 1389-1412, 2019 Jun.
Artículo
en Inglés
| MEDLINE | ID: mdl-30725391
6.
Agreement between mothers', fathers', and children's' ratings on health-related quality of life in children born with esophageal atresia - a German cross-sectional study.
BMC Pediatr
; 19(1): 330, 2019 09 11.
Artículo
en Inglés
| MEDLINE | ID: mdl-31510959
7.
Health-related quality of life experiences in children and adolescents born with esophageal atresia: A Swedish-German focus group study.
Child Care Health Dev
; 45(1): 79-88, 2019 01.
Artículo
en Inglés
| MEDLINE | ID: mdl-30221367
8.
The Esophageal-Atresia-Quality-of-life Questionnaires: Feasibility, Validity and Reliability in Sweden and Germany.
J Pediatr Gastroenterol Nutr
; 67(4): 469-477, 2018 Oct.
Artículo
en Inglés
| MEDLINE | ID: mdl-29738345
9.
Macrophage Phenotype Is Associated With the Regenerative Response in Experimental Replacement of the Porcine Esophagus.
Artif Organs
; 40(10): 950-958, 2016 Oct.
Artículo
en Inglés
| MEDLINE | ID: mdl-26667982
10.
Health-related quality of life among children, young people and adults with esophageal atresia: a review of the literature and recommendations for future research.
Qual Life Res
; 24(10): 2433-45, 2015 Oct.
Artículo
en Inglés
| MEDLINE | ID: mdl-25829227
11.
Parents' experiences of communication with neonatal intensive-care unit staff: an interview study.
BMC Pediatr
; 14: 304, 2014 Dec 10.
Artículo
en Inglés
| MEDLINE | ID: mdl-25492549
12.
Parents' experiences with neonatal home care following initial care in the neonatal intensive care unit: a phenomenological hermeneutical interview study.
J Adv Nurs
; 70(3): 575-86, 2014 Mar.
Artículo
en Inglés
| MEDLINE | ID: mdl-23870004
13.
Parents' experiences of treatment and outcomes in high-grade vesicoureteral reflux in infants - One piece in the puzzle of VUR management?
J Pediatr Urol
; 2024 May 31.
Artículo
en Inglés
| MEDLINE | ID: mdl-38876891
14.
Linguistic, Content and Face Validity of the Swedish Version of a Quality-of-Life Assessment for Children, Teenagers and Adults with Spina Bifida.
Int J Environ Res Public Health
; 21(5)2024 May 15.
Artículo
en Inglés
| MEDLINE | ID: mdl-38791838
15.
A Narrative Review of Patient-Reported Outcome Measures and Their Application in Recent Pediatric Surgical Research: Advancing Knowledge and Offering New Perspectives to the Field.
Eur J Pediatr Surg
; 34(2): 143-161, 2024 Apr.
Artículo
en Inglés
| MEDLINE | ID: mdl-38272041
16.
The association of feeding difficulties and generic health-related quality of life among children born with esophageal atresia.
Orphanet J Rare Dis
; 18(1): 237, 2023 08 09.
Artículo
en Inglés
| MEDLINE | ID: mdl-37559149
17.
Prevalence of Mental Health Problems, Associated Factors, and Health-Related Quality of Life in Children with Long-Gap Esophageal Atresia in Sweden.
J Pediatr Surg
; 58(9): 1646-1655, 2023 Sep.
Artículo
en Inglés
| MEDLINE | ID: mdl-36635161
18.
The International Network on Oesophageal Atresia (INoEA) consensus guidelines on the transition of patients with oesophageal atresia-tracheoesophageal fistula.
Nat Rev Gastroenterol Hepatol
; 20(11): 735-755, 2023 Nov.
Artículo
en Inglés
| MEDLINE | ID: mdl-37286639
19.
Reliability and Validity of the Polish Version of the Esophageal-Atresia-Quality-of-Life Questionnaires to Assess Condition-Specific Quality of Life in Children and Adolescents Born with Esophageal Atresia.
Int J Environ Res Public Health
; 19(13)2022 06 30.
Artículo
en Inglés
| MEDLINE | ID: mdl-35805703
20.
The Chinese Mandarin Version of the Esophageal-Atresia-Quality-of-Life Questionnaires for Children and Adolescents: Evaluation of Linguistic and Content Validity.
Int J Environ Res Public Health
; 19(22)2022 11 13.
Artículo
en Inglés
| MEDLINE | ID: mdl-36429641