Detalles de la búsqueda
1.
"They don't really get heard": A qualitative study of sibling involvement across two forms of family-based treatment for adolescent anorexia nervosa.
Eat Disord
; 26(4): 373-387, 2018.
Artículo
en Inglés
| MEDLINE | ID: mdl-29683775
2.
Development of a fragile X syndrome (FXS) knowledge scale: towards a modified multidimensional measure of informed choice for FXS population carrier screening.
Health Expect
; 18(1): 69-80, 2015 Feb.
Artículo
en Inglés
| MEDLINE | ID: mdl-23067225
3.
"Both Sides of the Wheelchair": The Views of Individuals with, and Parents of Individuals with Friedreich Ataxia Regarding Pre-symptomatic Testing of Minors.
J Genet Couns
; 24(5): 732-43, 2015 Oct.
Artículo
en Inglés
| MEDLINE | ID: mdl-25592143
4.
Ethical dilemmas associated with genetic testing: which are most commonly seen and how are they managed?
Genet Med
; 15(5): 345-53, 2013 May.
Artículo
en Inglés
| MEDLINE | ID: mdl-23154524
5.
"It was the missing piece": adolescent experiences of predictive genetic testing for adult-onset conditions.
Genet Med
; 15(8): 643-9, 2013 Aug.
Artículo
en Inglés
| MEDLINE | ID: mdl-23448724
6.
"There's a whole different way of working with adolescents": interviews with Australian Genetic Counselors about their experiences with adolescent clients.
J Genet Couns
; 22(5): 674-84, 2013 Oct.
Artículo
en Inglés
| MEDLINE | ID: mdl-23686516
7.
Adolescents with implantable cardioverter defibrillators: a patient and parent perspective.
Pacing Clin Electrophysiol
; 35(1): 62-72, 2012 Jan.
Artículo
en Inglés
| MEDLINE | ID: mdl-21967596
8.
Predictive genetic testing in minors for late-onset conditions: a chronological and analytical review of the ethical arguments.
J Med Ethics
; 38(9): 519-24, 2012 Sep.
Artículo
en Inglés
| MEDLINE | ID: mdl-22403084
9.
Visual storytelling: a beneficial but challenging method for health research with young people.
Qual Health Res
; 20(12): 1677-88, 2010 Dec.
Artículo
en Inglés
| MEDLINE | ID: mdl-20729503
10.
"You're one of us now": young people describe their experiences of predictive genetic testing for Huntington disease (HD) and familial adenomatous polyposis (FAP).
Am J Med Genet C Semin Med Genet
; 148C(1): 47-55, 2008 Feb 15.
Artículo
en Inglés
| MEDLINE | ID: mdl-18189288
11.
"I'm scared of being like mum": The Experience of Adolescents Living in Families with Huntington Disease.
J Huntingtons Dis
; 4(3): 209-17, 2015.
Artículo
en Inglés
| MEDLINE | ID: mdl-26443924
12.
Balancing parental involvement with adolescent friendly health care in teenagers with diabetes: are we getting it right?
J Adolesc Health
; 55(1): 59-64, 2014 Jul.
Artículo
en Inglés
| MEDLINE | ID: mdl-24518535
13.
Tricky teens: are they really tricky or do genetic health professionals simply require more training in adolescent health?
Per Med
; 10(6): 589-600, 2013 Aug.
Artículo
en Inglés
| MEDLINE | ID: mdl-29776191
14.
Confidential consultations with adolescents: an exploration of Australian parents' perspectives.
J Adolesc Health
; 52(6): 786-91, 2013 Jun.
Artículo
en Inglés
| MEDLINE | ID: mdl-23415756
15.
Clinical genetics and the problem with unqualified confidentiality.
Am J Bioeth
; 6(2): 41-3; discussion W32-4, 2006.
Artículo
en Inglés
| MEDLINE | ID: mdl-16500851
16.
Confidentiality with adolescents in the medical setting: what do parents think?
J Adolesc Health
; 49(4): 428-30, 2011 Oct.
Artículo
en Inglés
| MEDLINE | ID: mdl-21939875
17.
The challenge of developmentally appropriate care: predictive genetic testing in young people for familial adenomatous polyposis.
Fam Cancer
; 9(1): 27-35, 2010 Mar.
Artículo
en Inglés
| MEDLINE | ID: mdl-19760114
18.
Is my mum going to hear this? Methodological and ethical challenges in qualitative health research with young people.
Soc Sci Med
; 69(11): 1691-9, 2009 Dec.
Artículo
en Inglés
| MEDLINE | ID: mdl-19782456
19.
"Holding your breath": interviews with young people who have undergone predictive genetic testing for Huntington disease.
Am J Med Genet A
; 143A(17): 1984-9, 2007 Sep 01.
Artículo
en Inglés
| MEDLINE | ID: mdl-17663467
20.
Respecting adolescents' autonomy (as long as they make the right choice).
J Adolesc Health
; 47(2): 113-4, 2010 Aug.
Artículo
en Inglés
| MEDLINE | ID: mdl-20638002