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1.
Patient-centred outcomes and effect of disease progression on health status in patients with newly diagnosed advanced ovarian cancer and a BRCA mutation receiving maintenance olaparib or placebo (SOLO1): a randomised, phase 3 trial.
Lancet Oncol
; 22(5): 632-642, 2021 05.
Artículo
en Inglés
| MEDLINE | ID: mdl-33862001
2.
The patient journey to diagnosis and treatment of congenital sucrase-isomaltase deficiency.
Qual Life Res
; 30(8): 2329-2338, 2021 Aug.
Artículo
en Inglés
| MEDLINE | ID: mdl-33772704
3.
Content validity of a novel patient-reported and observer-reported outcomes assessment to evaluate ocular symptoms associated with infectious conjunctivitis in both adult and pediatric populations.
Health Qual Life Outcomes
; 17(1): 163, 2019 Oct 30.
Artículo
en Inglés
| MEDLINE | ID: mdl-31666074
4.
Patient preferences for attributes of tyrosine kinase inhibitor treatments for EGFR mutation-positive non-small-cell lung cancer.
Future Oncol
; 15(34): 3895-3907, 2019 Dec.
Artículo
en Inglés
| MEDLINE | ID: mdl-31621403
5.
AcroVoice: eliciting the patients' perspective on acromegaly disease activity.
Pituitary
; 22(1): 62-69, 2019 Feb.
Artículo
en Inglés
| MEDLINE | ID: mdl-30627944
6.
Measurement Equivalence of Patient-Reported Outcome Measure Response Scale Types Collected Using Bring Your Own Device Compared to Paper and a Provisioned Device: Results of a Randomized Equivalence Trial.
Value Health
; 21(5): 581-589, 2018 05.
Artículo
en Inglés
| MEDLINE | ID: mdl-29753356
7.
An overview of current trends and gaps in patient-reported outcome measures used in haemophilia.
Eur J Haematol
; 93 Suppl 75: 1-8, 2014 Jun.
Artículo
en Inglés
| MEDLINE | ID: mdl-24966140
8.
Illustrating the impact of mild/moderate and severe haemophilia on health-related quality of life: hypothesised conceptual models.
Eur J Haematol
; 93 Suppl 75: 9-18, 2014 Jun.
Artículo
en Inglés
| MEDLINE | ID: mdl-24966141
9.
Patient-reported experience of bleeding events in haemophilia.
Eur J Haematol
; 93 Suppl 75: 19-28, 2014 Jun.
Artículo
en Inglés
| MEDLINE | ID: mdl-24966142
10.
A Novel Approach to Computing Preference Estimates for Different Treatment Pathways: An Application in Oncology.
Patient
; 17(4): 397-406, 2024 Jul.
Artículo
en Inglés
| MEDLINE | ID: mdl-38491203
11.
The patient experience with fatigue and content validity of a measure to assess fatigue severity: qualitative research in patients with ankylosing spondylitis (AS).
Health Qual Life Outcomes
; 11: 192, 2013 Nov 11.
Artículo
en Inglés
| MEDLINE | ID: mdl-24215664
12.
Introduction to special section: measuring what matters.
Qual Life Res
; 27(1): 1-3, 2018 01.
Artículo
en Inglés
| MEDLINE | ID: mdl-29177566
13.
Using qualitative interviews to identify patient-reported clinical trial endpoints and analyses that are the most meaningful to patients with advanced breast cancer.
PLoS One
; 18(1): e0280259, 2023.
Artículo
en Inglés
| MEDLINE | ID: mdl-36649275
14.
Development of the PREMature Infant Index (PREMII™), a clinician-reported outcome measure assessing functional status of extremely preterm infants.
J Matern Fetal Neonatal Med
; 35(5): 941-950, 2022 Mar.
Artículo
en Inglés
| MEDLINE | ID: mdl-32138571
15.
Patient Global Impression of Benefit-Risk (PGI-BR): Incorporating Patients' Views of Clinical Benefit-Risk into Assessment of New Medicines.
Drug Saf
; 44(10): 1059-1072, 2021 10.
Artículo
en Inglés
| MEDLINE | ID: mdl-34129206
16.
Agreement Among Paper and Electronic Modes of the EQ-5D-5L.
Patient
; 13(4): 435-443, 2020 08.
Artículo
en Inglés
| MEDLINE | ID: mdl-32346816
17.
Patient perspectives on the pathway to psoriatic arthritis diagnosis: results from a web-based survey of patients in the United States.
BMC Rheumatol
; 4: 2, 2020.
Artículo
en Inglés
| MEDLINE | ID: mdl-31938764
18.
Perceived Burden of Completion of Patient-Reported Outcome Measures in Clinical Trials:: Results of a Preliminary Study.
Ther Innov Regul Sci
; 53(3): 318-323, 2019 05.
Artículo
en Inglés
| MEDLINE | ID: mdl-30058368
19.
The Parkinson's Disease Activities of Daily Living, Interference, and Dependence Instrument.
Mov Disord Clin Pract
; 6(8): 678-686, 2019 Nov.
Artículo
en Inglés
| MEDLINE | ID: mdl-31745478
20.
Healthcare provider perspectives on diagnosing and treating adults with attention-deficit/hyperactivity disorder.
Postgrad Med
; 131(7): 461-472, 2019 Sep.
Artículo
en Inglés
| MEDLINE | ID: mdl-31340712