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1.
An observational, patient-reported outcome study of sleep quality and depression among individuals with overactive bladder syndrome.
Neurourol Urodyn
; 43(2): 437-448, 2024 Feb.
Artículo
en Inglés
| MEDLINE | ID: mdl-38108212
2.
Enhanced clinical decisions for management of benign prostatic hyperplasia using patient-reported outcomes: protocol for a prospective observational study.
BMC Urol
; 24(1): 110, 2024 May 21.
Artículo
en Inglés
| MEDLINE | ID: mdl-38773430
3.
Measuring PROMIS® Physical Activity and Sleep Problems in Early Childhood.
J Pediatr Psychol
; 47(5): 534-546, 2022 05 13.
Artículo
en Inglés
| MEDLINE | ID: mdl-35552434
4.
Patient Reported Outcomes Measurement Information System and Quality of Life in Neurological Disorders Measurement System to Evaluate Quality of Life for Children and Adolescents with Neurofibromatosis Type 1 Associated Plexiform Neurofibroma.
J Pediatr
; 206: 190-196, 2019 03.
Artículo
en Inglés
| MEDLINE | ID: mdl-30413310
5.
Further content validation of the 18-item NCCN/FACT Ovarian Symptom Index and its Disease Related Symptom-Physical (DRS-P) subscale for use in advanced ovarian cancer clinical trials.
Health Qual Life Outcomes
; 17(1): 185, 2019 Dec 19.
Artículo
en Inglés
| MEDLINE | ID: mdl-31856850
6.
Lifespan Development: Symptoms Experienced by Individuals with Neurofibromatosis Type 1 Associated Plexiform Neurofibromas from Childhood into Adulthood.
J Clin Psychol Med Settings
; 26(3): 259-270, 2019 09.
Artículo
en Inglés
| MEDLINE | ID: mdl-30298332
7.
Using a qualitative approach to conceptualize concerns of patients with neurofibromatosis type 1 associated plexiform neurofibromas (pNF) across the lifespan.
Am J Med Genet A
; 173(1): 79-87, 2017 Jan.
Artículo
en Inglés
| MEDLINE | ID: mdl-27666129
8.
Considerations for conducting qualitative research with pediatric patients for the purpose of PRO development.
Qual Life Res
; 25(9): 2193-9, 2016 09.
Artículo
en Inglés
| MEDLINE | ID: mdl-26941216
9.
Elevated plasma albumin and apolipoprotein A-I oxidation under suboptimal specimen storage conditions.
Mol Cell Proteomics
; 13(7): 1890-9, 2014 Jul.
Artículo
en Inglés
| MEDLINE | ID: mdl-24736286
10.
Content validity of the NCCN-FACT ovarian symptom index-18 (NFOSI-18).
Gynecol Oncol
; 136(2): 317-22, 2015 Feb.
Artículo
en Inglés
| MEDLINE | ID: mdl-25499602
11.
Development of a symptom index for patients with primary brain tumors.
Value Health
; 17(1): 62-9, 2014.
Artículo
en Inglés
| MEDLINE | ID: mdl-24438718
12.
Enhanced Clinical Decisions for Management of Benign Prostatic Hyperplasia using Patient-Reported Outcomes: Protocol for a Prospective Observational Study.
Res Sq
; 2024 May 06.
Artículo
en Inglés
| MEDLINE | ID: mdl-38766034
13.
Development and initial validation of the NCCN/FACT symptom index for advanced kidney cancer.
Value Health
; 16(5): 789-96, 2013.
Artículo
en Inglés
| MEDLINE | ID: mdl-23947972
14.
Measuring priority symptoms in advanced bladder cancer: development and initial validation of a brief symptom index.
J Support Oncol
; 11(2): 86-93, 2013 Jun.
Artículo
en Inglés
| MEDLINE | ID: mdl-23089235
15.
Using IT to Improve Outcomes for Children Living With Cancer (SyMon-SAYS): Protocol for a Single-Institution Waitlist Randomized Controlled Trial.
JMIR Res Protoc
; 12: e50993, 2023 Sep 08.
Artículo
en Inglés
| MEDLINE | ID: mdl-37682593
16.
Ethical and Psychosocial Factors in the Decision-Making and Informed Consent Process for Upper Extremity Vascularized Composite Allotransplantation: A Mixed-Methods Study.
Transplant Direct
; 9(8): e1515, 2023 Aug.
Artículo
en Inglés
| MEDLINE | ID: mdl-37492079
17.
A Patient-Centered Website (Within Reach) to Foster Informed Decision-making About Upper Extremity Vascularized Composite Allotransplantation: Development and Usability Study.
JMIR Form Res
; 7: e44144, 2023 Feb 07.
Artículo
en Inglés
| MEDLINE | ID: mdl-36749618
18.
Patient preferences of patient selection criteria for upper extremity vascularized composite allotransplantation: A qualitative study.
SAGE Open Med
; 11: 20503121231181236, 2023.
Artículo
en Inglés
| MEDLINE | ID: mdl-37342616
19.
Patient definitions of transplant success in upper extremity vascularized composite allotransplantation: A mixed-methods study.
SAGE Open Med
; 11: 20503121231184677, 2023.
Artículo
en Inglés
| MEDLINE | ID: mdl-37465724
20.
Measuring health-related quality of life in leukemia: the Functional Assessment of Cancer Therapy--Leukemia (FACT-Leu) questionnaire.
Value Health
; 15(8): 1051-8, 2012 Dec.
Artículo
en Inglés
| MEDLINE | ID: mdl-23244807