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1.
ERN ReCONNET points to consider for treating patients living with autoimmune rheumatic diseases with antiviral therapies and anti-SARS-CoV-2 antibody products.
Clin Exp Rheumatol
; 41(3): 543-553, 2023 Mar.
Artículo
en Inglés
| MEDLINE | ID: mdl-36916322
2.
Assessing quality of life in Behçet's disease: a systematic review.
Clin Exp Rheumatol
; 40(8): 1560-1566, 2022 Sep.
Artículo
en Inglés
| MEDLINE | ID: mdl-36106544
3.
The added value of a European Reference Network on rare and complex connective tissue and musculoskeletal diseases: insights after the first 5 years of the ERN ReCONNET.
Clin Exp Rheumatol
; 40 Suppl 134(5): 3-11, 2022 May.
Artículo
en Inglés
| MEDLINE | ID: mdl-35349419
4.
Adherence to treatment in Behçet's syndrome: a multi-faceted issue.
Clin Exp Rheumatol
; 39 Suppl 132(5): 88-93, 2021.
Artículo
en Inglés
| MEDLINE | ID: mdl-34596034
5.
Sharing good practice in rare diseases: the experience of an innovative hybrid laboratory of narrative medicine and narrative psychology for patients and caregivers living with Behçet's disease.
Clin Exp Rheumatol
; 40(8): 1609, 2022 09.
Artículo
en Inglés
| MEDLINE | ID: mdl-36106539
6.
A cost-of-illness study of Behçet syndrome in Italy.
Eur J Health Econ
; 25(3): 411-422, 2024 Apr.
Artículo
en Inglés
| MEDLINE | ID: mdl-37212892
7.
Patient Care Pathways for Pregnancy in Rare and Complex Rheumatic Diseases: Results From an International Survey.
J Rheumatol
; 50(7): 934-938, 2023 07.
Artículo
en Inglés
| MEDLINE | ID: mdl-36642433
8.
Long-term outcomes of COVID-19 vaccination in patients with rare and complex connective tissue diseases: The ERN-ReCONNET VACCINATE study.
J Transl Autoimmun
; 7: 100221, 2023 Dec.
Artículo
en Inglés
| MEDLINE | ID: mdl-38162456
9.
An Opportunity to Harmonise the Approach to Patients' Care Pathways for Rare and Complex Diseases: RarERN Path™.
Front Health Serv
; 2: 935014, 2022.
Artículo
en Inglés
| MEDLINE | ID: mdl-36925875
10.
Exploring patient's experience and unmet needs on pregnancy and family planning in rare and complex connective tissue diseases: a narrative medicine approach.
RMD Open
; 8(2)2022 12.
Artículo
en Inglés
| MEDLINE | ID: mdl-36597980
11.
An overlook on the current registries for rare and complex connective tissue diseases and the future scenario of TogethERN ReCONNET.
Front Med (Lausanne)
; 9: 889997, 2022.
Artículo
en Inglés
| MEDLINE | ID: mdl-36226147
12.
Being a caregiver of a Behçet's syndrome patient: challenges and perspectives during a complex journey.
Orphanet J Rare Dis
; 16(1): 436, 2021 10 18.
Artículo
en Inglés
| MEDLINE | ID: mdl-34663419
13.
Empowering Patients in the Therapeutic Decision-Making Process: A Glance Into Behçet's Syndrome.
Front Med (Lausanne)
; 8: 769870, 2021.
Artículo
en Inglés
| MEDLINE | ID: mdl-34966756
14.
The impact of COVID-19 on rare and complex connective tissue diseases: the experience of ERN ReCONNET.
Nat Rev Rheumatol
; 17(3): 177-184, 2021 03.
Artículo
en Inglés
| MEDLINE | ID: mdl-33408338
15.
RarERN Path: a methodology towards the optimisation of patients' care pathways in rare and complex diseases developed within the European Reference Networks.
Orphanet J Rare Dis
; 15(1): 347, 2020 12 14.
Artículo
en Inglés
| MEDLINE | ID: mdl-33317578
16.
Shaping the Future of Rare Diseases after a Global Health Emergency: Organisational Points to Consider.
Int J Environ Res Public Health
; 17(22)2020 11 23.
Artículo
en Inglés
| MEDLINE | ID: mdl-33238523
17.
Clinical practice guidelines adherence, knowledge and awareness in rare and complex connective tissue diseases across Europe: results from the first ERN ReCONNET survey.
RMD Open
; 6(2): 0, 2020 08.
Artículo
en Inglés
| MEDLINE | ID: mdl-32868449
18.
Publisher Correction: The impact of COVID-19 on rare and complex connective tissue diseases: the experience of ERN ReCONNET.
Nat Rev Rheumatol
; 18(12): 734, 2022 Dec.
Artículo
en Inglés
| MEDLINE | ID: mdl-36203063
19.
Correction to: RarERN Path: a methodology towards the optimisation of patients' care pathways in rare and complex diseases developed within the European Reference Networks.
Orphanet J Rare Dis
; 16(1): 146, 2021 Mar 22.
Artículo
en Inglés
| MEDLINE | ID: mdl-33752690
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