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1.
Mental health care for rare disease in the UK - recommendations from a quantitative survey and multi-stakeholder workshop.
BMC Health Serv Res
; 22(1): 648, 2022 May 14.
Artículo
en Inglés
| MEDLINE | ID: mdl-35568910
2.
Factors affecting overall care experience for people living with rare conditions in the UK: exploratory analysis of a quantitative patient experience survey.
Orphanet J Rare Dis
; 19(1): 77, 2024 Feb 19.
Artículo
en Inglés
| MEDLINE | ID: mdl-38373961
3.
Rare musculoskeletal diseases in adults: a research priority setting partnership with the James Lind Alliance.
Orphanet J Rare Dis
; 15(1): 117, 2020 05 19.
Artículo
en Inglés
| MEDLINE | ID: mdl-32430048
4.
Strengthening international patient advocacy perspectives on patient involvement in HTA within the HTAi Patient and Citizen Involvement Interest Group - Commentary.
Res Involv Engagem
; 3: 3, 2017.
Artículo
en Inglés
| MEDLINE | ID: mdl-29062528
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