Detalles de la búsqueda
1.
Psychosocial experiences of clinicians providing care for children with severe neurological impairment.
Dev Med Child Neurol
; 2024 Jun 05.
Artículo
en Inglés
| MEDLINE | ID: mdl-38837791
2.
The opinions and experiences of people with intellectual disability regarding genetic testing and genetic medicine: A systematic review.
Genet Med
; 24(3): 535-548, 2022 03.
Artículo
en Inglés
| MEDLINE | ID: mdl-34906474
3.
Hope in the uncertainties and certainty for parents of children with rare neurological disorders: Part 3 (of 3): Hope.
J Paediatr Child Health
; 58(10): 1726-1728, 2022 10.
Artículo
en Inglés
| MEDLINE | ID: mdl-36062939
4.
Hope in the uncertainties and certainty for parents of children with rare neurological disorders: Part 2 (of 3): Certainty.
J Paediatr Child Health
; 58(10): 1722-1725, 2022 10.
Artículo
en Inglés
| MEDLINE | ID: mdl-36069627
5.
Hope in the uncertainties and certainty for parents of children with rare neurological disorders. Part I (of 3): Uncertainty.
J Paediatr Child Health
; 58(10): 1718-1721, 2022 10.
Artículo
en Inglés
| MEDLINE | ID: mdl-36069374
6.
Feasibility of a mental health informed physical activity intervention for the carers of children with developmental and epileptic encephalopathy.
Epilepsy Behav
; 121(Pt A): 108022, 2021 08.
Artículo
en Inglés
| MEDLINE | ID: mdl-34020203
7.
The information needs of parents of children with early-onset epilepsy: A systematic review.
Epilepsy Behav
; 112: 107382, 2020 11.
Artículo
en Inglés
| MEDLINE | ID: mdl-32854014
8.
Exploring childhood cancer survivor, parent, healthcare and community professionals' experiences of, and priorities for, using digital health to engage in physical activity: a mixed methods study.
J Cancer Surviv
; 2024 Mar 13.
Artículo
en Inglés
| MEDLINE | ID: mdl-38478196
9.
Neurodevelopmental outcomes in a cohort of Australian families with self-limited familial epilepsy of neonatal/infantile onset.
Seizure
; 115: 1-13, 2024 Feb.
Artículo
en Inglés
| MEDLINE | ID: mdl-38160512
10.
The psychosocial impact of childhood dementia on children and their parents: a systematic review.
Orphanet J Rare Dis
; 18(1): 277, 2023 09 07.
Artículo
en Inglés
| MEDLINE | ID: mdl-37679855
11.
Genetic Testing in the Pediatric Nephrology Clinic: Understanding Families' Experiences.
J Pediatr Genet
; 11(2): 117-125, 2022 Jun.
Artículo
en Inglés
| MEDLINE | ID: mdl-35769952
12.
Piloting positive psychology resources for caregivers of a child with a genetic developmental and epileptic encephalopathy.
Eur J Paediatr Neurol
; 37: 129-138, 2022 Mar.
Artículo
en Inglés
| MEDLINE | ID: mdl-35240556
13.
Hearing parents' voices: A priority-setting workshop to inform a suite of psychological resources for parents of children with rare genetic epilepsies.
PEC Innov
; 1: 100014, 2022 Dec.
Artículo
en Inglés
| MEDLINE | ID: mdl-37364015
14.
Acceptability and feasibility of an online information linker service for caregivers who have a child with genetic epilepsy: a mixed-method pilot study protocol.
BMJ Open
; 12(10): e063249, 2022 10 26.
Artículo
en Inglés
| MEDLINE | ID: mdl-36288836
15.
The stigma of clean dieting and orthorexia nervosa.
J Eat Disord
; 5: 37, 2017.
Artículo
en Inglés
| MEDLINE | ID: mdl-28852502
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