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1.
Efficacy of Burosumab in Adults with X-linked Hypophosphatemia (XLH): A Post Hoc Subgroup Analysis of a Randomized Double-Blind Placebo-Controlled Phase 3 Study.
Calcif Tissue Int
; 111(4): 409-418, 2022 10.
Artículo
en Inglés
| MEDLINE | ID: mdl-35927518
2.
Patient-Reported Outcomes from a Randomized, Active-Controlled, Open-Label, Phase 3 Trial of Burosumab Versus Conventional Therapy in Children with X-Linked Hypophosphatemia.
Calcif Tissue Int
; 108(5): 622-633, 2021 05.
Artículo
en Inglés
| MEDLINE | ID: mdl-33484279
3.
Interpreting change from patient reported outcome (PRO) endpoints: patient global ratings of concept versus patient global ratings of change, a case study among osteoporosis patients.
Health Qual Life Outcomes
; 14: 25, 2016 Feb 19.
Artículo
en Inglés
| MEDLINE | ID: mdl-26896284
4.
A qualitative investigation of patients' and caregivers' experiences of severe sepsis*.
Crit Care Med
; 43(2): 296-307, 2015 Feb.
Artículo
en Inglés
| MEDLINE | ID: mdl-25251757
5.
Lenalidomide, melphalan, and prednisone, followed by lenalidomide maintenance, improves health-related quality of life in newly diagnosed multiple myeloma patients aged 65 years or older: results of a randomized phase III trial.
Haematologica
; 98(5): 784-8, 2013 May.
Artículo
en Inglés
| MEDLINE | ID: mdl-23242595
6.
Patient Reported Outcome (PRO) assessment in epilepsy: a review of epilepsy-specific PROs according to the Food and Drug Administration (FDA) regulatory requirements.
Health Qual Life Outcomes
; 11: 38, 2013 Mar 11.
Artículo
en Inglés
| MEDLINE | ID: mdl-23497117
7.
Burosumab Improves Patient-Reported Outcomes in Adults With Tumor-Induced Osteomalacia: Mixed-Methods Analysis.
J Bone Miner Res
; 38(11): 1654-1664, 2023 11.
Artículo
en Inglés
| MEDLINE | ID: mdl-37578099
8.
Benefit of burosumab in adults with X-linked hypophosphataemia (XLH) is maintained with long-term treatment.
RMD Open
; 9(1)2023 02.
Artículo
en Inglés
| MEDLINE | ID: mdl-36854566
9.
A qualitative investigation into the impact of hemophagocytic lymphohistiocytosis on children and their caregivers.
Orphanet J Rare Dis
; 16(1): 205, 2021 05 06.
Artículo
en Inglés
| MEDLINE | ID: mdl-33957935
10.
Validation of the Radiographic Global Impression of Change (RGI-C) score to assess healing of rickets in pediatric X-linked hypophosphatemia (XLH).
Bone
; 148: 115964, 2021 07.
Artículo
en Inglés
| MEDLINE | ID: mdl-33878504
11.
Burosumab treatment in adults with X-linked hypophosphataemia: 96-week patient-reported outcomes and ambulatory function from a randomised phase 3 trial and open-label extension.
RMD Open
; 7(3)2021 09.
Artículo
en Inglés
| MEDLINE | ID: mdl-34548383
12.
Estimation of utilities in attention-deficit hyperactivity disorder for economic evaluations.
Patient
; 4(4): 247-57, 2011.
Artículo
en Inglés
| MEDLINE | ID: mdl-21995830
13.
Assessing and demonstrating data saturation in qualitative inquiry supporting patient-reported outcomes research.
Expert Rev Pharmacoecon Outcomes Res
; 10(3): 269-81, 2010 Jun.
Artículo
en Inglés
| MEDLINE | ID: mdl-20545592
14.
Lennox-Gastaut syndrome (LGS): development of conceptual models of health-related quality of life (HRQL) for caregivers and children.
Seizure
; 19(1): 23-30, 2010 Jan.
Artículo
en Inglés
| MEDLINE | ID: mdl-19948417
15.
Impact of Lennox-Gastaut Syndrome (LGS) on health-related quality of life (HRQL) of patients and caregivers: literature review.
Seizure
; 18(8): 554-8, 2009 Oct.
Artículo
en Inglés
| MEDLINE | ID: mdl-19592271
16.
A validated patient reported measure of urinary urgency severity in overactive bladder for use in clinical trials.
J Urol
; 174(2): 604-7, 2005 Aug.
Artículo
en Inglés
| MEDLINE | ID: mdl-16006914
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