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1.
Randomized feasibility trial of the Scleroderma Patient-centered Intervention Network hand exercise program (SPIN-HAND).
PeerJ
; 10: e13471, 2022.
Artículo
en Inglés
| MEDLINE | ID: mdl-35945943
2.
Reasons for not participating in scleroderma patient support groups: a comparison of results from the North American and European scleroderma support group surveys.
Disabil Rehabil
; 43(9): 1279-1286, 2021 05.
Artículo
en Inglés
| MEDLINE | ID: mdl-31522575
3.
Reasons for attending support groups and organizational preferences: A replication study using the North American Scleroderma Support Group Survey.
J Scleroderma Relat Disord
; 4(3): 173-186, 2019 Oct.
Artículo
en Inglés
| MEDLINE | ID: mdl-35382506
4.
Scleroderma Patient-centered Intervention Network-Scleroderma Support group Leader EDucation (SPIN-SSLED) program: non-randomised feasibility trial.
BMJ Open
; 9(11): e029935, 2019 11 11.
Artículo
en Inglés
| MEDLINE | ID: mdl-31719073
5.
The Scleroderma Research Topics Survey for patients and health care professionals: A Scleroderma Patient-centered Intervention Network Project.
J Scleroderma Relat Disord
; 4(3): 165-172, 2019 Oct.
Artículo
en Inglés
| MEDLINE | ID: mdl-35382508
6.
Reasons for attending support groups and organizational preferences: the European scleroderma support group members survey.
Disabil Rehabil
; 41(8): 974-982, 2019 04.
Artículo
en Inglés
| MEDLINE | ID: mdl-29254393
7.
Training and support needs of scleroderma support group facilitators: the North American Scleroderma Support Group Facilitators Survey.
Disabil Rehabil
; 41(20): 2477-2482, 2019 10.
Artículo
en Inglés
| MEDLINE | ID: mdl-29696997
8.
Factors associated with negative observer responses towards individuals with visible differences: A scoping review.
Body Image
; 25: 103-132, 2018 Jun.
Artículo
en Inglés
| MEDLINE | ID: mdl-29525737
9.
Reasons for Not Participating in Scleroderma Patient Support Groups: A Cross-Sectional Study.
Arthritis Care Res (Hoboken)
; 70(2): 275-283, 2018 02.
Artículo
en Inglés
| MEDLINE | ID: mdl-28217869
10.
Development and preliminary validation of the Scleroderma Support Group Leader Self-efficacy Scale.
J Scleroderma Relat Disord
; 3(1): 106-111, 2018 Feb.
Artículo
en Inglés
| MEDLINE | ID: mdl-35382120
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