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1.
Telephone health services in the field of rare diseases: a qualitative interview study examining the needs of patients, relatives, and health care professionals in Germany.
BMC Health Serv Res
; 18(1): 99, 2018 02 09.
Artículo
en Inglés
| MEDLINE | ID: mdl-29426339
2.
Rare Diseases on the Internet: An Assessment of the Quality of Online Information.
J Med Internet Res
; 19(1): e23, 2017 01 18.
Artículo
en Inglés
| MEDLINE | ID: mdl-28100442
3.
[Central information portal on rare diseases : Implementation of quality- and needs-oriented information management]. / Zentrales Informationsportal über seltene Erkrankungen : Umsetzung eines qualitäts- und bedarfsorientierten Informationsmanagements.
Bundesgesundheitsblatt Gesundheitsforschung Gesundheitsschutz
; 60(5): 494-502, 2017 May.
Artículo
en Alemán
| MEDLINE | ID: mdl-28271149
4.
Comparison of different approaches applied in Analytic Hierarchy Process - an example of information needs of patients with rare diseases.
BMC Med Inform Decis Mak
; 16: 117, 2016 09 09.
Artículo
en Inglés
| MEDLINE | ID: mdl-27613239
5.
Metadata Correction: Conceptualization and Implementation of the Central Information Portal on Rare Diseases: Protocol for a Qualitative Study.
JMIR Res Protoc
; 7(9): e11248, 2018 09 19.
Artículo
en Inglés
| MEDLINE | ID: mdl-30240351
6.
Conceptualization and Implementation of the Central Information Portal on Rare Diseases: Protocol for a Qualitative Study.
JMIR Res Protoc
; 7(5): e112, 2018 May 11.
Artículo
en Inglés
| MEDLINE | ID: mdl-29752252
7.
Shaping an Effective Health Information Website on Rare Diseases Using a Group Decision-Making Tool: Inclusion of the Perspectives of Patients, Their Family Members, and Physicians.
Interact J Med Res
; 6(2): e23, 2017 Nov 20.
Artículo
en Inglés
| MEDLINE | ID: mdl-29158209
8.
Measuring patients' priorities using the Analytic Hierarchy Process in comparison with Best-Worst-Scaling and rating cards: methodological aspects and ranking tasks.
Health Econ Rev
; 6(1): 50, 2016 Dec.
Artículo
en Inglés
| MEDLINE | ID: mdl-27844450
9.
[Healthcare services for people in Lower Saxony (Germany) suffering from a rare disease: Findings from a survey among medical professionals]. / Die Versorgung von Menschen mit seltenen Erkrankungen in Niedersachsen: Ergebnisse einer Ärztebefragung.
Z Evid Fortbild Qual Gesundhwes
; 113: 36-44, 2016.
Artículo
en Alemán
| MEDLINE | ID: mdl-27480187
10.
Adopting Quality Criteria for Websites Providing Medical Information About Rare Diseases.
Interact J Med Res
; 5(3): e24, 2016 Aug 25.
Artículo
en Inglés
| MEDLINE | ID: mdl-27562540
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