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1.
Weathering the storm when the end of the road is near: A qualitative analysis of supportive care needs during CAR T-cell therapy in pediatrics.
Pediatr Blood Cancer
; : e31092, 2024 Jun 12.
Artículo
en Inglés
| MEDLINE | ID: mdl-38867358
2.
Barriers and facilitators of the return-to-school process affecting adolescent recipients of allogeneic hematopoietic cell transplantation: A qualitative interview study of caregivers.
Pediatr Blood Cancer
; : e30510, 2023 Jun 21.
Artículo
en Inglés
| MEDLINE | ID: mdl-37345353
3.
Motivations and concerns of patients considering participation in an implementation study of a hereditary cancer risk assessment program in diverse primary care settings.
Genet Med
; 24(3): 610-621, 2022 03.
Artículo
en Inglés
| MEDLINE | ID: mdl-34906471
4.
Home mechanical ventilation for children with severe neurological impairment: Parents' perspectives on clinician counselling.
Dev Med Child Neurol
; 64(7): 840-846, 2022 07.
Artículo
en Inglés
| MEDLINE | ID: mdl-35080259
5.
Family Experiences Deciding For and Against Pediatric Home Ventilation.
J Pediatr
; 229: 223-231, 2021 02.
Artículo
en Inglés
| MEDLINE | ID: mdl-33068566
6.
Integrating stakeholder feedback in translational genomics research: an ethnographic analysis of a study protocol's evolution.
Genet Med
; 22(6): 1094-1101, 2020 06.
Artículo
en Inglés
| MEDLINE | ID: mdl-32089547
7.
A Randomized Trial Evaluating the Prophylactic Activity of DSM265 Against Preerythrocytic Plasmodium falciparum Infection During Controlled Human Malarial Infection by Mosquito Bites and Direct Venous Inoculation.
J Infect Dis
; 217(5): 693-702, 2018 02 14.
Artículo
en Inglés
| MEDLINE | ID: mdl-29216395
8.
Multiplex, DNase-free one-step reverse transcription PCR for Plasmodium 18S rRNA and spliced gametocyte-specific mRNAs.
Malar J
; 16(1): 208, 2017 05 19.
Artículo
en Inglés
| MEDLINE | ID: mdl-28526032
9.
Family-Reflections.com: Creating a parent-to-parent web-based tool regarding pediatric home ventilation.
Patient Educ Couns
; 114: 107855, 2023 09.
Artículo
en Inglés
| MEDLINE | ID: mdl-37348312
10.
"What Would Give Her the Best Life?": Understanding Why Families Decline Pediatric Home Ventilation.
J Palliat Med
; 26(7): 930-940, 2023 07.
Artículo
en Inglés
| MEDLINE | ID: mdl-36662553
11.
Parent perspectives on facilitating decision-making around pediatric home ventilation.
Pediatr Pulmonol
; 57(2): 567-575, 2022 02.
Artículo
en Inglés
| MEDLINE | ID: mdl-34738745
12.
Assessment of Resilience Training for Hospital Employees in the Era of COVID-19.
JAMA Netw Open
; 5(7): e2220677, 2022 07 01.
Artículo
en Inglés
| MEDLINE | ID: mdl-35796151
13.
Engaging Patient Advisory Committees to Inform a Genomic Cancer Risk Study: Lessons for Future Efforts.
Perm J
; 26(2): 28-39, 2022 06 29.
Artículo
en Inglés
| MEDLINE | ID: mdl-35933674
14.
Perceived Utility of Genomic Sequencing: Qualitative Analysis and Synthesis of a Conceptual Model to Inform Patient-Centered Instrument Development.
Patient
; 15(3): 317-328, 2022 05.
Artículo
en Inglés
| MEDLINE | ID: mdl-34658003
15.
Parents Are the Experts: A Qualitative Study of the Experiences of Parents of Children With Severe Neurological Impairment During Decision-Making.
J Pain Symptom Manage
; 62(6): 1117-1125, 2021 12.
Artículo
en Inglés
| MEDLINE | ID: mdl-34147578
16.
Life with pediatric home ventilation: Expectations versus experience.
Pediatr Pulmonol
; 56(10): 3366-3373, 2021 10.
Artículo
en Inglés
| MEDLINE | ID: mdl-34310864
17.
Participant Reactions to a Literacy-Focused, Web-Based Informed Consent Approach for a Genomic Implementation Study.
AJOB Empir Bioeth
; 12(1): 1-11, 2021.
Artículo
en Inglés
| MEDLINE | ID: mdl-32981477
18.
Exploring Ethical Concerns About Human Challenge Studies: A Qualitative Study of Controlled Human Malaria Infection Study Participants' Motivations and Attitudes.
J Empir Res Hum Res Ethics
; 14(1): 49-60, 2019 02.
Artículo
en Inglés
| MEDLINE | ID: mdl-30585505
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