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1.
Estimating mortality in rare diseases using a population-based registry, 2002 through 2019.
Orphanet J Rare Dis
; 18(1): 362, 2023 Nov 17.
Artículo
en Inglés
| MEDLINE | ID: mdl-37978388
2.
Real-world use of orphan medicinal products (OMPs) in rare disease (RD) patients: A population-based registry study.
Front Pharmacol
; 13: 940010, 2022.
Artículo
en Inglés
| MEDLINE | ID: mdl-36249759
3.
[The impact of the use of treatments not included in the reimbursement classes in the care of rare patients: a real world study.] / L'impatto dell'uso dei trattamenti non compresi nelle classi di rimborsabilità nella presa in carico dei malati rari: uno studio in campo reale.
Recenti Prog Med
; 113(7): 440-450, 2022.
Artículo
en Italiano
| MEDLINE | ID: mdl-35852080
4.
Correction: Estimating mortality in rare diseases using a population-based registry, 2002 through 2019.
Orphanet J Rare Dis
; 19(1): 43, 2024 Feb 06.
Artículo
en Inglés
| MEDLINE | ID: mdl-38321540
5.
The Epidemiology of Transition into Adulthood of Rare Diseases Patients: Results from a Population-Based Registry.
Int J Environ Res Public Health
; 15(10)2018 10 10.
Artículo
en Inglés
| MEDLINE | ID: mdl-30309015
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