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1.
Diet and physical activity behaviors: how are they related to illness perceptions, coping, and health-related quality of life in young people with hereditary cancer syndromes?
J Behav Med
; 2024 Apr 20.
Artículo
en Inglés
| MEDLINE | ID: mdl-38642305
2.
How do young people with a hereditary cancer predisposition syndrome understand and experience cancer survivorship? "With Li-Fraumeni syndrome, it's just an intermission".
Psychooncology
; 32(3): 375-382, 2023 03.
Artículo
en Inglés
| MEDLINE | ID: mdl-36514197
3.
Reproduction and Genetic Responsibility: An Interpretive Description of Reproductive Decision-Making for Young People With Li-Fraumeni Syndrome.
Qual Health Res
; 32(1): 168-181, 2022 01.
Artículo
en Inglés
| MEDLINE | ID: mdl-34781775
4.
Defining self-disclosure of personal cancer coping experiences in oncology social workers' helping relationships: When cancer "hits home".
J Psychosoc Oncol
; 40(3): 288-302, 2022.
Artículo
en Inglés
| MEDLINE | ID: mdl-33900876
5.
"I need to know if I'm going to die young": Adolescent and young adult experiences of genetic testing for Li-Fraumeni syndrome.
J Psychosoc Oncol
; 39(1): 54-73, 2021.
Artículo
en Inglés
| MEDLINE | ID: mdl-32449501
6.
Family Identity and Roles in the Context of Li-Fraumeni Syndrome: "No One's Like Us Mutants".
Health Soc Work
; 46(4): 299-307, 2021 Nov 16.
Artículo
en Inglés
| MEDLINE | ID: mdl-34618014
7.
Health professionals' practice for young people with, or at risk of, Li-Fraumeni syndrome: An Australasian survey.
J Genet Couns
; 29(5): 737-747, 2020 10.
Artículo
en Inglés
| MEDLINE | ID: mdl-31872506
8.
Family Health Leaders: Lessons on Living with Li-Fraumeni Syndrome across Generations.
Fam Process
; 59(4): 1648-1663, 2020 12.
Artículo
en Inglés
| MEDLINE | ID: mdl-31647118
9.
Couples coping with screening burden and diagnostic uncertainty in Li-Fraumeni syndrome: Connection versus independence.
J Psychosoc Oncol
; 37(2): 178-193, 2019.
Artículo
en Inglés
| MEDLINE | ID: mdl-30591002
10.
Legacies and Relationships: Diverse Social Networks and BRCA1/2 Risk Management Decisions and Actions.
J Fam Nurs
; 25(1): 28-53, 2019 02.
Artículo
en Inglés
| MEDLINE | ID: mdl-30537877
11.
Gratitude, protective buffering, and cognitive dissonance: How families respond to pediatric whole exome sequencing in the absence of actionable results.
Am J Med Genet A
; 176(3): 578-588, 2018 03.
Artículo
en Inglés
| MEDLINE | ID: mdl-29446570
12.
Correction to: Talking with Children about Adult-Onset Hereditary Cancer Risk: A Developmental Approach for Parents.
J Genet Couns
; 27(6): 1523, 2018 12.
Artículo
en Inglés
| MEDLINE | ID: mdl-30033482
13.
Talking with Children About Adult-Onset Hereditary Cancer Risk: A Developmental Approach for Parents.
J Genet Couns
; 27(3): 533-548, 2018 06.
Artículo
en Inglés
| MEDLINE | ID: mdl-29383546
14.
Catalysts towards cancer risk management action: A longitudinal study of reproductive-aged women with BRCA1/2 mutations.
J Psychosoc Oncol
; 36(5): 529-544, 2018.
Artículo
en Inglés
| MEDLINE | ID: mdl-29863445
15.
"They Can't Find Anything Wrong with Him, Yet": Mothers' experiences of parenting an infant with a prenatally diagnosed copy number variant (CNV).
Am J Med Genet A
; 173(2): 444-451, 2017 Feb.
Artículo
en Inglés
| MEDLINE | ID: mdl-28102595
16.
Longitudinal cancer risk management trajectories of BRCA1/2 mutation-positive reproductive-age women.
J Psychosoc Oncol
; 35(4): 393-408, 2017.
Artículo
en Inglés
| MEDLINE | ID: mdl-28332940
17.
Balancing Genetics (Science) and Counseling (Art) in Prenatal Chromosomal Microarray Testing.
J Genet Couns
; 25(5): 855-67, 2016 10.
Artículo
en Inglés
| MEDLINE | ID: mdl-27207687
18.
"Something Extra on Chromosome 5": Parents' Understanding of Positive Prenatal Chromosomal Microarray Analysis (CMA) Results.
J Genet Couns
; 25(5): 1116-26, 2016 10.
Artículo
en Inglés
| MEDLINE | ID: mdl-26940446
19.
Couple's Narratives of Communion and Isolation Following Abnormal Prenatal Microarray Testing Results.
Qual Health Res
; 26(14): 1975-1987, 2016 Dec.
Artículo
en Inglés
| MEDLINE | ID: mdl-26351292
20.
That eagle covering me: transitioning and connected autonomy for emerging adults with cystinosis.
Pediatr Nephrol
; 30(2): 281-91, 2015 Feb.
Artículo
en Inglés
| MEDLINE | ID: mdl-25159720