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1. Patient- and caregiver-reported impact of symptoms in Duchenne muscular dystrophy.
2. Chronic pain, psychological distress, and quality of life in males with Duchenne muscular dystrophy.
3. Can in-the-moment diary methods measure health-related quality of life in Duchenne muscular dystrophy?
4. Engaging patients and caregivers in prioritizing symptoms impacting quality of life for Duchenne and Becker muscular dystrophy.
5. Development of a Clinical Global Impression of Change (CGI-C) and a Caregiver Global Impression of Change (CaGI-C) measure for ambulant individuals with Duchenne muscular dystrophy.
6. 'Our time is precious': An exploration of parental feeding behaviours for boys with Duchenne muscular dystrophy.
7. 'It is easier to not allow them to see your disability straight away, to see you as a person': An Interpretative Phenomenological Analysis of video gaming from the perspectives of men with Duchenne Muscular Dystrophy.
8. A comprehensive qualitative framework for health-related quality of life in Duchenne muscular dystrophy.
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10. A review of quality of life themes in Duchenne muscular dystrophy for patients and carers.