Efeito da pandemia por Covid-19 nos cuidados de indivíduos com distrofia muscular de Duchenne / Covid-19 pandemic's effect on the care of individuals with Duchenne muscular dystrophy
Kovacs, Ana Paula Horokosky; Sequeira, Vanessa Cristina Cunha; Kovacs, Julia Maria Horokosky Miranda e Silva; Pereira, Jaqueline Almeida; Fortes, Clarisse Pereira Dias Drumond; Araújo, Alexandra Prufer de Queiroz Campos; Ribeiro, Márcia Gonçalves.
Rev. Bras. Neurol. (Online)
; 58(2): 25-30, abr.-jun. 2022. tab, graf
Artículo
en Portugués
| LILACS | ID: biblio-1395442
INTRODUCTION:
Since December 2019, the scientific community has been mobilized to contain the COVID-19 pandemic. Although individuals with Duchenne Muscular Dystrophy (DMD) have restrictive lung disease, risk of immunosuppression and associated cardiomyopathy, they are not considered to be a risk group for COVID-19. DMD is a neuromuscular, genetic and progressive disease, with early childhood development. In order to manage the disease, multidisciplinary follow-up is necessary to improve this patient's quality of life.OBJECTIVE:
Identify the impact of the pandemic on the care of patients with DMD and its repercussions.METHOD:
This is a cross-sectional, quantitative and descriptive study. The sample consisted of patients diagnosed with DMD aged between 4 and 18 years, followed up at the neuropediatrics service. Data collection was carried out by an interview with those responsible for the patient and evaluation of the medical records, using a questionnaire. Statistical analysis was descriptive using central tendency and dispersion measures.RESULTS:
Among the 44 patients included, the median age was 12 years and the predominant type of gene mutation was deletion (56.8%). The median age of first symptoms was 4 years. Thirteen patients had contact with family members positive for COVID-19 and tested positive for the disease. Eleven received the vaccine against COVID-19. Medical followups suffered a great reduction in the pandemic period, as well as respiratory and motor physiotherapy.CONCLUSION:
The pandemic interfered with multidisciplinary care for patients with DMD. As a chronic and degenerative disease, individuals with DMD require ongoing care, which was interrupted by the pandemic scenario.
Biblioteca responsable:
BR14.1
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