Experience of parents of children with congenital heart disease: feelings and obstacles / Vivência de pais de crianças com cardiopatia congênita: sentimentos e obstáculos
Barreto, Thaís Sena Mombach; Sakamoto, Victória Tiyoko Moraes; Magagnin, Jardel Scremin; Coelho, Débora Fernandes; Waterkemper, Roberta; Canabarro, Simone Travi.
Rev Rene (Online)
; 17(1): 128-136, jan.-fev. 2016.
Artículo
en Inglés
| LILACS, BDENF - enfermagem (Brasil) | ID: lil-786864
Objective:
understand the meaning of the experiences of parents of children with congenital heart disease regarding feelings, obstacles and expectations.Methods:
qualitative study conducted at a pediatric intensive care unit of a reference hospital. Participants corresponded to seven mothers and four fathers of children with congenital heart defect, surgically corrected and with more than 8 hours of admission, totalling 11 participants. Data collection was performed through semi-structured individual recorded interviews. Data were described according to thematic content analysis.Results:
five thematic categories emerged (1) unpreparedness to face the problem; (2) feelings involved (3) factors that make difficult to face the problem; (4) factors that facilitate facing the problem; (5) spirituality.Conclusion:
each family is unique and needs support to better face the disease and its process. It is essential to develop interdisciplinary network support, providing comprehensive care.
Biblioteca responsable:
BR6.1
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