Father's perceptions and care involvement for their very preterm infants at French neonatal intensive care units.

Objectives: We aimed to evaluate (1) fathers' perceptions and care involvement for their very premature infants and their views of the hospitalization period based on parental reports and (2) their evolution over time. Methods: We used an online parental survey to assess answers from parents of very preterm infants who were successfully discharged from French neonatal units. We analysed answers from February 2014 to January 2019 to an anonymous internet-based survey from the GREEN committee of the French Neonatal Society. Responses were compared for period 1 (P1, 1998 to 2013) and period 2 (P2, 2014 to 2019). Results: We analyzed 2,483 surveys, 124 (5%) from fathers and 2,359 (95%) from mothers. At birth, 1,845 (80%) fathers were present in the hospital, but only 879 (38%) were near the mother. The presence of fathers in the NICU increased from P1 to P2 (34.5% vs. 43.1%, p = 0.03). Nearly two thirds of fathers accompanied their infants during transfer to the NICU (1,204 fathers, 60.6%). Fathers and mothers had similar perceptions regarding relationships with caregivers and skin-to-skin contact with their infants. However, more fathers than mothers felt welcome in the NICU and in care involvement regarding requests for their wishes when they met their infant (79% vs. 60%, p = 0.02) and in the presentation of the NICU (91% vs. 76%; p = 0.03). Mothers and fathers significantly differed in the caring procedures they performed (p = 0.01), procedures they did not perform but wanted to perform (p < 0.001), and procedures they did not perform and did not want to perform (p < 0.01). Conclusion: Most fathers were present at the births of their very preterm infants, but fewer fathers were near the mother at this time. Less than two thirds of fathers accompanied their infants to the NICU. There should be further changes to better meet the specific needs of the fathers of infants requiring care in the NICU. Continuing assessment with an online questionnaire may be useful to monitor changes over time in father's involvement in NICUs.

A Masked Truth? Public Discussions about Face Masks on a French Health Forum.

By analyzing the discussion on a health forum, we examine how wearing sanitary masks during the Covid-19 pandemic changed people's lives and what adjustments were required. During our review, we encountered theories referred to by participants as "conspiracy theories" that led to heated exchanges on the forum. Surprisingly, these interactions promoted, rather than prevented, collective exploration and resulted in a rich discussion of the issues related to wearing masks. Using a combination of quantitative and qualitative methods, we first analyze the dynamics of the discussion, its progression, and the conditions under which it was maintained over time, even given the radical expression of irreconcilable positions. Second, we examine the results of the discussion in terms of describing the problems triggered by the mask and the different authorities on which these descriptions were based. We conclude that the boundaries between science and non-science were occasionally blurred because of the wavering of scientific authorities and the uncertainty of the questions related to the pandemic, rather than because of a generalized distrust of science. We recognize that paradoxically, "conspiracist" theories contribute to the production of knowledge and that the adherence to these theories may stem more from the personal experiences of the individuals who profess them, rather than from the contaminating power of conspiracy theories.

Emotional responses of parents participating for the first time in caregiving for their baby in a neonatal unit.

BACKGROUND: Parents of term and preterm infants hospitalised at birth experience a stressful situation. They are considered as primary caregivers in neonatal units and are encouraged to participate in their child's care. OBJECTIVES: The aim of our study was to analyse the feelings of parents participating for the first time in caregiving for their baby admitted at birth in a neonatal unit in France and to compare the feelings reported by parents of term and preterm infants. METHODS: An online survey was created in 2014 for parents who had a baby hospitalised at birth. We analysed parents' responses to this open-ended question: "How did you feel when you participated in caregiving for your baby for the first time?" using a qualitative discourse analysis by two analysts. Themes were identified and coded. RESULTS: Between February 2014 and March 2018, 1603 parents of preterm infants and 239 parents of term infants responded to this open-ended question. Twenty-five per cent of parents expressed positive feelings exclusively (confidence, ease, joy, pride, feeling supported by healthcare professionals, by their family and feeling of being a parent), 41% expressed negative feelings exclusively (stress, fear, feeling of being judged, frustration, anger, uselessness and clumsiness) and 34% expressed mixed feelings (both positive and negative). Parents of term infants expressed less frequent feelings of stress and fear than parents of preterm infants: with a relative risk (RR) of 0.69, 95% confidence interval (CI) 0.56, 0.87. Parents of term babies more frequently expressed feelings of frustration: RR 2.40 (95% CI 1.33, 4.32). CONCLUSIONS: Infant- and Family-Centred Developmental Care supportive programmes are recommended within neonatal units in order to improve the experience of parents participating in caregiving for their baby hospitalised at birth.

[Exchanges between patients on the Internet]. / Les échanges entre patients sur l'Internet.

Internet is an important place for debates between patients, whose active discussions allow the patient to appropriate medical information and to build up their expertise. Lists and forums are regulated and organised areas; discussions about common rules take up a large place in the discussion. On discussion lists, we observe that speech is unequally distributed: 10% of the most talkative speakers send between 50 and 70% of all the messages; we also observe the temporal stability of the groups and the weak prevalence of anonymity which is made possible because the group is not open freely to the general public. Experimented speakers dominate discussions on lists as on forums. 4 speakers' profiles can be distinguished: the adviser, the agitator, the hyperactive person, and the charismatic leader. The tone of a list is defined, among others, by the distribution of those profiles. A systematic study of the contents of discussion lists reveals six main topics within the debates on health: collective, personal and interpersonal, medicine, patient / user, information, and phatic. We can distinguish various kinds of lists: lists focused on the articulation between patients experiences and medical expertise, lists mainly concerned by the exchange of personal experiences, lists organized around the sharing of medical information, and finally lists dedicated to mutual support. In collaboratively contributing to the production of health information, patients involved in these discussions can open the way to enrichment of medical knowledge.