ABSTRACT
BACKGROUND: Parkinson's disease progressively limits patients at different levels and as a result family members play a key role in their care. However, studies show lack of an integrative approach in Primary Care to respond to the difficulties and psychosocial changes experienced by them. The aim of this study is to evaluate the effects of a multidisciplinary psychoeducational intervention focusing on improving coping skills, the psychosocial adjustment to Parkinson's disease and the quality of life in patients and family carers in a Primary Care setting. METHODS: This quasi-experimental study with control group and mixed methods was designed to evaluate a multidisciplinary psychoeducational intervention. Based on the study power calculations, 100 people with Parkinson's disease and 100 family carers will be recruited and assigned to two groups. The intervention group will receive the ReNACE psychoeducational intervention. The control group will be given a general educational programme. The study will be carried out in six community-based health centres. The results obtained from the two groups will be collected for evaluation at three time points: at baseline, immediately after the intervention and at 6 months post-intervention. The results will be measured with these instruments: the Quality of Life Scale PDQ-39 for patients and the Scale of Quality of Life of Care-givers SQLC for family carers, and for all participants the Psychosocial Adjustment to Illness scale and the Brief COPE Inventory. Focus groups will be organised with some patients and family carers who will have received the ReNACE psychoeducational intervention and also with the healthcare professionals involved in its development. DISCUSSION: An important gap exists in the knowledge and application of interventions with a psychosocial approach for people with PD and family carers as a whole. This study will promote this comprehensive approach in Primary Care, which will clearly contribute in the existing knowledge and could reduce the burden of PD for patients and family carers, and also in other long-term conditions. TRIAL REGISTRATION: NCT03129425 (ClinicalTrials.gov). Retrospectively registered on April 26, 2017.
Subject(s)
Caregivers/education , Health Education/methods , Parkinson Disease/therapy , Quality of Life , Adult , Humans , Patient Education as Topic/methods , Research Design , SpainABSTRACT
Introducción: Se presenta una valoración del grado de cumplimiento del I Plan Gerontológico de Navarra (1997-2000). A propuesta del Departamento de Bienestar Social del Gobierno de Navarra se procedió en consecuencia incorporando, además, algunas líneas de actuación para el nuevo Plan. Material y métodos: Se ha procedido a recoger y elaborar cuanta información aporte datos estadísticos de interés sobre las personas mayores en Navarra. Hay que destacar la información facilitada por el Instituto Navarro de Bienestar Social, el Departamento de Salud del Gobierno de Navarra y el Instituto de Estadística de Navarra. A ello se suma el análisis pormenorizado del I Plan Gerontológico de Navarra. Resultados: Se constata que la población mayor de Navarra tiende a corto plazo hacia el sobreenvejecimiento y, por tanto, se detecta una necesidad objetiva de adecuación de los objetivos de las políticas sociales vigentes en Navarra. Igualmente, se pone de manifiesto el importante esfuerzo social y de los órganos responsables de las políticas sociosanitarias por cumplir las medidas de actuación propuestas en el I Plan Gerontológico de Navarra. No obstante, se han producido ciertos desfases en la distribución de los recursos económicos previstos. Discusión: Los resultados apuntan a la conveniencia de adaptar el I Plan Gerontológico de Navarra al nuevo contexto social, marcado por un significativo sobreenvejecimiento. Obviamente, ello demanda la elaboración a medio plazo de un nuevo Plan que cubra líneas estratégicas como las preventivas, la mejora de la calidad en los servicios, centros y programas (AU)
Subject(s)
Aged , Female , Male , Humans , Health Systems Plans/statistics & numerical data , Health Services for the Aged/statistics & numerical data , Health Policy/trends , Public Policy , Social Welfare/trends , Primary Prevention/trends , Quality of Health Care/trends , Aging , Health Expenditures/trendsABSTRACT
Tuberculosis is one of the infectious diseases that can be qualified as constant throughout the history of illnesses. Nonetheless, starting in the early decades of the XX century, mortality provoked by this complaint began a progressive decline throughout Europe. This retrocession also took place in Spain, although with evident regional and local differences. Because of its nature, throughout this century a series of social and medical mechanisms and strategies have been developed around it. Together with the undoubted importance of quantitative analysis, it is essential to pay attention to the social, economic and medical-care factors that have affected its evolution, and the degree of effectiveness of the anti-tuberculosis campaigns. In this way we will be in a situation to present the results - those lights and shadows - of the socio-care policies created for the country as a whole, but applied to a specific space and society such as Pamplona. Similarly, it is not possible to disregard the renewed interest that is being shown in different forums because of the resistances and variations that have been detected in the bacilli, and especially because it has been related to the end of the century "plague", AIDS.
