Dificuldades vivenciadas pela família e pela criança/adolescente com doença renal crônica / Difficulties experienced by children/adolescents with chronic renal disease and by their families

Este artigo enfoca um dos objetivos de um estudo mais amplo sobre a realização de diálise peritoneal (DP) em crianças e adolescentes no domicílio. Descreve e discute os relatos dos cuidadores sobre as reações e dificuldades vivenciadas pela família e pela criança/adolescente com doença renal crônica (DRC) para a realização da DP. Método: Realizou-se no período de março de 2004 a maio de 2006 estudo descritivo constituído de um universo de 30 crianças e adolescentes portadores de DRC, assistidos pelo HC/UFMG, abordando questões relativas às dificuldades dos cuidadores quanto à aplicação da técnica de DP e as queixas das crianças/ adolescentes quanto à DP por meio de entrevista, acompanhamento de consulta de rotina e visita domiciliar. Resultados: As principais queixas foram: limitações que a diálise peritoneal em si. Conclusão: O conhecimento da realidade vivenciada pela criança/adolescente com DRC e pela família pode subsidiar ações e medidas a fim de melhorar a qualidade de vida dos envolvidos e contribuir para o sucesso da técnica dialítica.

This article focuses on one of the goals of a larger study on the performance of peritoneal dialysis (PD) in children and adolescents at home. Describes and discusses reports on the reactions of caregivers and difficulties experienced by family and child / adolescent with chronic kidney disease (CKD) for the realization of DP. Method: We conducted from March 2004 to May 2006 descriptive study consisting of a universe of 30 children and adolescents with CKD, assisted by the HC / UFMG, addressing issues relating to caregivers' difficulties in applying the technique of PD and complaints from children and adolescents with PD as through interviews, follow-up consultation and routine visits. Results: The main complaints were limitations that peritoneal dialysis itself. Conclusion: The knowledge of the reality experienced by children / adolescents with CKD and the family can support actions and measures to improve the quality of life of those involved and contribute to the success of the technique of dialysis.

Estudo descritivo sobre a prática da diálise peritoneal em domicílio / Descriptive study about the practice of peritoneal dialysis at home

Introdução: A partir da vivência no atendimento de crianças/adolescentes portadores de doença renal crônica (DRC) em tratamento dialítico no ambiente hospitalar pensou-se que aspectos seriam relevantes para a aplicação da diálise peritoneal domiciliar. o objetivo deste estudo foi descrever o nível de escolaridade e de informação do cuidador sobre a técnica de diálise peritoneal (DP), a renda familiar e condições gerais do local de realização da diálise e buscar associação com a realização inadequada da técnica. Método: Trata-se de um estudo descritivo do universo de 30 crianças e adolescentes com DRC assistidos pelo HC/UFMG no período de março de 2004 a maio de 2006. os dados foram analisados utilizando-se software SPPS versão 13.0. As seguintes variáveis foram testadas como possíveis fatores de risco para inadequação da técnica de diálise: escolaridade do cuidador, renda familiar, nível de informação do cuidador sobre a técnica de diálise, antissepsia das mãos, ausência de pia no quarto da diálise. Resultados: A qualidade de aplicação da técnica de DP foi considerada inadequada em 18 (60%) pacientes. Todos os valores de Odds Ratio estiveram dentro dos limites dos intervalos de confiança (95%) e foram >1, indicando a possibilidade de associação positiva entre variável independente e variável pesquisada, embora sem diferença estatítica significativa. Conclusões: A análise estatística não mostrou associação entre variáveis, entretanto acredita-se que elas exercem um papel positivo para o sucesso da aplicação da técnica dialítica.

Introduction: From the experience in the care of children / adolescents with chronic kidney disease (CKD) on dialysis in the hospital thought that aspects would be relevant to the application of peritoneal dialysis at home. The aim of this study was to describe the level of education and information about the caregiver's technique of peritoneal dialysis (PD), family income and general conditions of the site of the dialysis and seek association with the inadequate implementation of the technique. Method: This was a descriptive study of the universe of 30 children and adolescents with CKD assisted by HC / UFMG from March 2004 to May 2006. data were analyzed using SPPS software version 13.0. The following variables were tested as possible risk factors for inadequate dialysis technique: the caregiver's education, family income, level of caregiver information on the technique of dialysis, antisepsis of the hands, no sink in the room of dialysis. Results: The quality of implementation of the PD technique was considered inappropriate in 18 (60%) patients. All odds ratios were within the confidence interval (95%) and were> 1, indicating the possibility of a positive association between independent variable and variable investigated, although no significant difference statistic. Conclusions: Statistical analysis showed no association between variables, however it is believed that they exert a positive role for the successful application of the technique of dialysis.

Fatores de risco para peritonites e internações / Risk factors for peritonitis and hospitalizations

Introdução: Investigou-se um universo de 30 crianças e adolescentes portadores de doença renal crônica em tratamento dialítico, assistidos pelo Hospital das Clínicas da UFMg, a fim de determinar fatores de risco para a frequência de peritonites e de internações. Método: Estudo descritivo em que para a obtenção dos resultados utilizou-se o software SPSS (Statistical Package for Social Science) versão 13.0. Testaram-se as variáveis: baixa escolaridade, baixa renda familiar, nível de informação inadequado, inadequação da antissepsia das mãos para a realização da diálise, ausência de pia no quarto da diálise como fator de risco para maior frequência de peritonites e internações. Resultados: Os valores de Odds ratio estiveram dentro dos limites dos intervalos de confiança (95%) e em alguns casos foram <1, indicando a possibilidade de associação negativa entre algumas variáveis independentes e as variáveis pesquisadas, embora sem diferença estatística significativa. Conclusão: Não foi detectada significância estatística para as variáveis testadas, embora haja uma tendência para a sua ocorrência.

Introduction: We investigated a population of 30 children and adolescents with chronic kidney disease on dialysis, assisted by the Hospital das Clínicas, to determine risk factors for the frequency of peritonitis and hospitalization. Method: Descriptive study in which to obtain the results we used the software SPSS (Statistical Package for Social Science) version 13.0. They tested the following variables: low education, low family income, level of inadequate information, inadequate antisepsis of hands to perform the dialysis, no sink in the room of dialysis as a risk factor for increased frequency of peritonitis and hospitalization. Results: Odds ratio values were within the confidence interval (95%) and in some cases were <1, indicating the possibility of a negative association between some independent variables and the variables studied, although not statistically significant. Conclusion: There was no statistical significance for the variables tested, although there is a tendency for its occurrence.

[Difficulties experienced by children/adolescents with chronic kidney disease and by their families].

INTRODUCTION: This article assesses one of the objectives of a larger study about home peritoneal dialysis (PD) in children/adolescents with chronic kidney disease (CKD). METHOD: Descriptive study carried out on 30 children/adolescents with CKD cared for at the Hospital das Clínicas of the UFMG from March 2004 to May 2006. A questionnaire was applied to their caregivers about the reactions and difficulties experienced by those patients and their families during dialysis programs. RESULTS: Their major complaints related to the limitations caused by dialysis to the patients'; and caregivers'; lives and to peritoneal dialysis itself. CONCLUSION: Knowledge about the reality experienced by children/adolescents with CKD and their families can promote actions and measures to improve the quality of life of all involved and consequently contribute to the success of the dialysis technique.

[Descriptive study about the practice of home peritoneal dialysis].

INTRODUCTION: As experienced with the assistance evaluation of children/adolescents with chronic kidney disease in dialysis treatment on hospital we thought about which aspects could be relevant to the peritoneal dialysis (PD) application at home. The objective was to describe the level of schooling and information of the parents about the PD technique, general conditions of the place used to do PD at home and search association with inadequate technique. METHOD: From March 2004 to May 2006 a descriptive study of an universe of 30 children and adolescents with chronic kidney disease treated in the HC/UFMG. To obtain the results was undertaken the software SPSS version 13.0. The parameters: low educational level, low family income, inadequate level of information, inadequate hygiene of hands during peritoneal dialysis (PD) procedure, were associated with worse quality of PD technique. RESULTS: The technique application of PD quality was considered inadequate in 18 (60%) patients. All the Odds Ratio values were into the confidence interval (95%) limits and were higher than 1 showing a possibility of a positive association between some independent variables and variable researched although without statistic significance. CONCLUSION: The statistical analysis did not show association between the parameters tested although they may have a positive role in the success of the dialysis technique.

[Risk factors for peritonitis and hospitalizations].

INTRODUCTION: This study assessed 30 children and adolescents with chronic kidney disease on dialysis, cared for at the Hospital das Clínicas of UFMG, aiming at determining the risk factors for the frequency of peritonitis and hospitalizations. METHOD: Descriptive study using the SPSS (Statistical Package for Social Science) software, version 13.0. The following variables were assessed as risk factors for a higher frequency of peritonitis and hospitalizations: low educational level; low family income; inadequate level of information; inadequate hand antisepsis during PD; and lack of a sink in the dialysis room. RESULTS: The odds ratio values were within the 95% confidence intervals, and, in some cases, were smaller than 1, indicating the possibility of a negative association between some independent variables and the variables studied, but with no statistically significant difference. CONCLUSION: No statistical significance was observed for the variables studied, despite the tendency towards that.