Sobrecarga de los cuidadores de pacientes de diálisis peritoneal. Validación de cuestionario y baremos / Carer's burden of peritoneal dialysis patients. Questionnaire and scale validation

INTRODUCCIÓN: Los cuidadores de pacientes en diálisis peritoneal pueden sufrir sobrecarga con características diferentes de la derivada de demencia, cáncer u otras enfermedades dependientes. OBJETIVOS: Analizar la fiabilidad y la validez del Cuestionario de Sobrecarga del Cuidador de Diálisis Peritoneal (CSCDP) elaborado anteriormente y establecer los baremos del mismo. MÉTODOS: Estudio observacional, multicéntrico de cuidadores y pacientes con más de 3 meses en diálisis peritoneal. Se registraron: características sociodemográficas de pacientes y cuidadores, dependencia de pacientes, salud percibida (SF-36) y sobrecarga del cuidador (escala de Zarit), además del CSCDP con 3 escalas: dependencia, sobrecarga subjetiva y sobrecarga objetiva. RESULTADOS: Fueron evaluables 107 cuidadores y pacientes de 8 hospitales. Los cuidadores fueron mayoritariamente mujeres (83,2%), con una edad media de 57,50 ± 14,69 años; un 36,4% trabajaban fuera de casa. La consistencia interna de la escala de Zarit y del CSCDP fue elevada (alfa de Cronbach entre 0,808 y 0,901). La correlación entre la sobrecarga del Zarit y la del CSCDP fue significativa (r = 0,683). La correspondencia entre 3 grados de sobrecarga del Zarit y los tertiles del CSCDP fue buena o aceptable (Tau-b Kendall: 0,570, p < 0,001). El análisis factorial exploratorio de componentes principales mostró 3 componentes coincidentes con el diseño del CSCDP. Se han elaborado los baremos de sobrecarga del cuidador. CONCLUSIONES: El estudio demuestra buena fiabilidad con elevada consistencia interna del cuestionario CSCDP. El análisis factorial denota validez de constructo y la buena correlación y aceptable correspondencia con la escala de Zarit indican validez de criterio. El cuestionario resulta apto para aplicación clínica

INTRODUCTION: Carers of peritoneal dialysis patients may suffer from burden, the characteristics of which differ from burden due to dementia, cancer or other dependent conditions. AIMS: To ascertain the reliability and validity of the Peritoneal Dialysis Carer Burden Questionnaire (PDCBQ), previously created, and to design the burden scale. METHODS: Observational, multicentre study of carers and patients on peritoneal dialysis for more than 3 months. Sociodemographic characteristics of patients and carers, patient dependency, perceived health (SF-36) and carer burden (Zarit scale) were recorded, as well as PDCBQ via 3 scales: dependence, subjective burden and objective burden. RESULTS: One hundred seven patients and their carers from 8 hospitals were evaluable. Carers were mainly women (83.2%), aged 57.50 ± 14.69 years, and 36.4% worked out of the home. The internal consistency of the Zarit scale and the PDCBQ were high (Cronbach's alfa between 0.808 and 0.901). Significant correlation was found between the Zarit scale and PDCBQ (r = 0.683). The concordance analysis between 3 degrees of Zarit Scale and PDCBQ tertiles was good or acceptable (Kendall Tau-b: 0.570, P < .001). The exploratory factor analysis of the main factors revealed 3 factors, which were successfully correlated with the design of the PDCBQ. A new carer burden scale was designed. CONCLUSIONS: The study shows good reliability with high internal consistency of the PDCBQ. Factorial analysis shows good construct and good correlation, and acceptable concordance with the Zarit Burden Scale confirmed criterion validity. The questionnaire is suitable to be applied in clinical practice

Carer's burden of peritoneal dialysis patients. Questionnaire and scale validation. / Sobrecarga de los cuidadores de pacientes de diálisis peritoneal. Validación de cuestionario y baremos.

INTRODUCTION: Carers of peritoneal dialysis patients may suffer from burden, the characteristics of which differ from burden due to dementia, cancer or other dependent conditions. AIMS: To ascertain the reliability and validity of the Peritoneal Dialysis Carer Burden Questionnaire (PDCBQ), previously created, and to design the burden scale. METHODS: Observational, multicentre study of carers and patients on peritoneal dialysis for more than 3 months. Sociodemographic characteristics of patients and carers, patient dependency, perceived health (SF-36) and carer burden (Zarit scale) were recorded, as well as PDCBQ via 3 scales: dependence, subjective burden and objective burden. RESULTS: One hundred seven patients and their carers from 8 hospitals were evaluable. Carers were mainly women (83.2%), aged 57.50±14.69 years, and 36.4% worked out of the home. The internal consistency of the Zarit scale and the PDCBQ were high (Cronbach's α between 0.808 and 0.901). Significant correlation was found between the Zarit scale and PDCBQ (r=0.683). The concordance analysis between 3 degrees of Zarit Scale and PDCBQ tertiles was good or acceptable (Kendall τ-b: 0.570, P<.001). The exploratory factor analysis of the main factors revealed 3 factors, which were successfully correlated with the design of the PDCBQ. A new carer burden scale was designed. CONCLUSIONS: The study shows good reliability with high internal consistency of the PDCBQ. Factorial analysis shows good construct and good correlation, and acceptable concordance with the Zarit Burden Scale confirmed criterion validity. The questionnaire is suitable to be applied in clinical practice.