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1.
Autism Res ; 16(2): 379-393, 2023 02.
Article in English | MEDLINE | ID: mdl-36515154

ABSTRACT

Despite the prevalence of special interests (SIs) in autistic youth, research on SIs and how they are characterized is limited. Indeed, a significant challenge in identifying and classifying SIs lies in capturing the vast and diverse scope of potential interests in this population. The recently developed Special Interest Survey (SIS) is a caregiver-report measure to improve SI characterization by capturing a broad range of past and current SIs. In the present study, we performed a network analysis of the SIS to examine relations between SIs and identify distinct interest clusters. We analyzed data from 1992 caregivers of autistic youths who completed the SIS. The network of SIs was densely interconnected, characterized by six communities of interests: Fact-seeking, Engineering, Order-seeking, Object Attachment, Entertainment, and Scholarly Pursuits. Findings suggest that the structure of the observed network is likely to generalize to similar samples. Of all the SIs and their respective communities, behaviors related to Fact-seeking were identified as the most central, meaning that endorsement of these interests was most strongly related to co-endorsement of other SIs. These findings lay the groundwork for future work on SIs, such as improved assessment techniques and linkage of SIs to a broad range of demographic variables, youth characteristics, and autism symptoms.


Subject(s)
Autism Spectrum Disorder , Adolescent , Humans , Autism Spectrum Disorder/diagnosis , Autism Spectrum Disorder/epidemiology , Surveys and Questionnaires , Prevalence , Caregivers
2.
Autism ; 25(6): 1580-1591, 2021 08.
Article in English | MEDLINE | ID: mdl-33709810

ABSTRACT

LAY ABSTRACT: Autistic individuals have more mental health difficulties than non-autistic individuals. It is important to understand why this might be. Research has shown that camouflaging, or strategies used to hide autistic traits, might contribute to mental health difficulties in autistic adults. We examined whether this was also the case for autistic adolescents. This study included 140 adolescents ages 13-18 years (62 non-autistic, 58 female). All participants answered questions about camouflaging, autistic traits, and mental health difficulties. We found that autistic and non-autistic adolescents who reported higher levels of camouflaging also reported higher levels of depression, anxiety, and stress. We also found that camouflaging might be particularly stressful for females. These findings improve our understanding of camouflaging during adolescence and point to potential ways to support autistic adolescents, such as help with social skills, self-acceptance, and self-esteem. The findings also support the importance of increasing autism acceptance in the general population.


Subject(s)
Autism Spectrum Disorder , Autistic Disorder , Adolescent , Adult , Anxiety/epidemiology , Female , Humans , Mental Health , Social Skills
3.
J Autism Dev Disord ; 51(12): 4422-4435, 2021 Dec.
Article in English | MEDLINE | ID: mdl-33590426

ABSTRACT

Camouflaging includes strategies used by individuals to mask or hide autistic traits. Research has shown that both autistic and neurotypical individuals engage in camouflaging and that there may be sex differences in the reasons for camouflaging in autistic adults. The purpose of this qualitative study was to extend previous research on the lived experience of camouflaging through exploring camouflaging motivations and consequences in autistic and neurotypical adolescents through both questionnaires (n = 132) and semi-structured interviews (n = 19). Results revealed trends in camouflaging motivations and consequences by diagnosis and sex, as well as by sex within the autistic group. These findings further inform our understanding of camouflaging and why it may be reported as particularly detrimental for autistic females.


Subject(s)
Autism Spectrum Disorder , Autistic Disorder , Adolescent , Adult , Female , Humans , Male , Motivation , Sex Characteristics , Surveys and Questionnaires
4.
J Autism Dev Disord ; 51(8): 2711-2724, 2021 Aug.
Article in English | MEDLINE | ID: mdl-33034785

ABSTRACT

Special interests (SIs) are part of the diagnostic criteria for autism spectrum disorder (ASD). Though they can have both positive and negative effects on functioning and long-term outcomes, research on SIs is limited. This pilot study used a newly developed parent-report measure, the Special Interest Survey, to characterize SIs in 1992 children with ASD. The mean number of current special interests reported was 9, with television, objects, and music being most commonly endorsed interests. The mean age of onset reported across all categories was 5.24 years, with duration of past interests most often exceeding 2 years. Age of onset, interference, and relative unusualness of the SI was varied across categories. Interference was significantly correlated with the unusualness of the SIs.


Subject(s)
Autism Spectrum Disorder/diagnosis , Adolescent , Child , Child, Preschool , Female , Humans , Male , Pilot Projects , Surveys and Questionnaires
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