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1.
Dtsch Arztebl Int ; (Forthcoming)2024 06 14.
Article in English | MEDLINE | ID: mdl-38566437

ABSTRACT

BACKGROUND: Treatment decisions in metastatic melanoma (MM) depend on patient preferences and require the patients' involvement in the decision-making process. Patients often feel overwhelmed by the complexity of treatment options with their individual advantages and disadvantages. We developed an online patient decision aid (PtDA) to facilitate shared decision making (SDM). METHODS: We conducted a two-center, two-armed, prospective, open randomized controlled trial with MM patients who were facing a decision about first-line treatment. They were randomly allotted (1:1) to the use or non-use of the PtDA before discussing the choice of treatment with a physician (intervention group [IG] and control group [CG], respectively). The primary endpoint of the study was patient knowledge about first-line treatment options (multiple-choice test, 10 items, range 0-40 points). The secondary endpoints were the degree of SDM (ratings of audio recordings of the patient-physician discussions by third-party observers) and satisfaction with the decision that was taken on later follow-up. RESULTS: 120 of the 128 randomized patients completed the baseline questionnaire and were included in the analysis (59% male, median age 66 years). The primary endpoint, i.e., the mean difference in knowledge after discussion with a physician, was significantly higher in the intervention group (mean difference -3.22, 95% CI [-6.32;-0.12], p = 0.042). No difference was found in either of the secondary endpoints (SDM and satisfaction with the decision). The patients in the intervention group rated the PtDA as very useful. CONCLUSION: PtDA improved MM patients' knowledge about their options for treatment. Both patients who used it and patients who did not were highly satisfied with their treatment decisions. Additional physician training seems necessary to promote SDM.

2.
Z Evid Fortbild Qual Gesundhwes ; 172: 40-48, 2022 Aug.
Article in English | MEDLINE | ID: mdl-35753947

ABSTRACT

BACKGROUND: Cancer patients are facing a variety of treatment and other disease-related decisions. This study aims to provide insights into preferred and perceived participation roles in decision-making among patients with diverse tumors using the German Cancer Information Service (CIS). METHODS: Patients' decision-making preferences and experiences were assessed as a part of a cross-sectional survey among CIS users. An adapted version of the Control Preferences Scale (CPS) was used to assess preferred and perceived participation roles in eight different areas of medical decision-making (e.g., choice of medication, termination of treatment). Logistic regression analyses were applied to explore preference matching and to analyze associations between participation roles and sociodemographic variables. Moreover, we examined preferences and perceptions of participation roles across different decision situations. RESULTS: In the final sample (N = 1566, 64.9% female, mean age = 61.6), almost half of the patients (47.1%) preferred to take a collaborative role in decisions on treatment methods, whereas 36.3% preferred an active role and 15.9% a passive role. Collaborative role preferences frequently (40.7%) coincided with experiencing a passive role and predicted a reduced chance of a match between preferences and experiences (OR = 0.57, p = .001). A higher level of education was associated with a lower chance of preferring and perceiving a passive role (OR = 0.85, p < .01). Compared with men, women had increased odds of preferring (OR = 1.45, p < .05) and of actually taking (OR = 2.04, p < .001) a passive role in medical encounters. Preferred participation roles regarding treatment methods were highly correlated with preferences in all other decision areas (r > .50, p < .001) except decisions about family involvement. CONCLUSIONS: The study reveals well-known deficits in the fulfilment of patients' collaborative role preferences across different areas of medical decision-making in a sample of CIS users characterized by high information-seeking behavior. Participation roles were not only influenced by the patients' level of education but also by their gender. The gender effect may be more pronounced than previous studies suggest. These effects should be considered in the development of interventions to promote shared decision-making. Additionally, study results indicate that preferences for participation in decisions about treatment methods, as assessed by the CPS, can be generalized to other areas of medical decision-making.


Subject(s)
Neoplasms , Patient Participation , Clinical Decision-Making , Cross-Sectional Studies , Decision Making , Female , Germany , Humans , Information Services , Male , Middle Aged , Neoplasms/therapy , Patient Preference , Physician-Patient Relations
3.
Z Evid Fortbild Qual Gesundhwes ; 171: 49-57, 2022 Jun.
Article in English | MEDLINE | ID: mdl-35595668

ABSTRACT

The main focus of this paper is to describe the development and current state of policy, research and implementation of patient-centered care (PCC) and shared decision-making (SDM) in Germany. What is the current state in health policy? Since 2013, the Law on Patients' Rights has standardized all rights and responsibilities regarding medical care for patients in Germany. This comprises the right to informed decisions, comprehensive and comprehensible information, and decisions based on a clinician-patient partnership. In addition, reports and action plans such as the German Ethics Council's report on patient well-being, the National Health Literacy Action Plan, or the National Cancer Plan emphasize and foster PCC and SDM on a policy level. There are a number of public organizations in Germany that support PCC and SDM. How are patients and the public involved in health policy and research? Publishers and funding agencies increasingly demand patient and public involvement. Numerous initiatives and organizations are involved in publicizing ways to engage patients and the public. Also, an increasing number of public and research institutions have established patient advisory boards. How is PCC and SDM taught? Great progress has been made in introducing SDM into the curricula of medical schools and other health care providers' (HCPs) schools (e.g., nursing, physical therapy). What is the German research agenda? The German government and other public institutions have constantly funded research programs in which PCC and SDM are important topics. This yielded several large-scale funding initiatives and helped to develop SDM training programs for HCPs in different fields of health care and information materials. Recently, two implementation studies on SDM have been conducted. What is the current uptake of PCC and SDM in routine care, and what implementation efforts are underway? Compared to the last country report from 2017, PCC and SDM efforts in policy, research and education have been intensified. However, many steps are still needed to reliably implement SDM in routine care in Germany. Specifically, the further development and uptake of decision tools and countrywide SDM trainings for HCPs require further efforts. Nevertheless, an increasing number of decision support tools - primarily with support from health insurance funds and other public agencies - are to be implemented in routine care. Also, recent implementation efforts are promising. For example, reimbursement by health insurance companies of hospital-wide SDM implementation is being piloted. A necessary next step is to nationally coordinate the gathering and provision of the many PCC and SDM resources available.


Subject(s)
Decision Making , Patient Participation , Decision Support Techniques , Germany , Humans , Patient-Centered Care
4.
Trials ; 22(1): 294, 2021 Apr 20.
Article in English | MEDLINE | ID: mdl-33879219

ABSTRACT

BACKGROUND: Patients with metastatic melanoma and their physicians are confronted with a complex decision regarding first-line therapy. Risks and benefits vary considerably between various treatment options. With this in mind, we aim to develop and evaluate a patient decision aid (PtDA) to inform patients about the risks and benefits of treatment options, namely, immunotherapy as monotherapy, immunotherapy as combination therapy, and treatment with BRAF/MEK inhibitors. We aim to test whether the use of this PtDA before medical consultation will increase patients' knowledge of treatment options and thus promote shared decision-making (SDM) and patient decision satisfaction. METHODS: In total, 128 patients with metastatic melanoma from two German cancer centers will be randomized to the intervention group (IG), receiving access to the PtDA before medical consultation, or the control group (CG), receiving treatment as usual (TAU), i.e., medical consultation alone. There will be three major assessment points (before intervention, T0; after intervention, T1; and 3 months after intervention, T2). The main outcome is the patient's knowledge of their treatment options, measured by a self-developed, piloted multiple-choice test at T1. Secondary outcome measures will include the extent of SDM during medical consultation, assessed by Observer OPTION 5, and patient decision satisfaction, assessed by the Satisfaction with Decision Scale (SwD), at T1 and T2. DISCUSSION: This trial will assess the effectiveness of a developed PtDA to enhance patient knowledge of treatment options for metastatic melanoma, SDM, and patient decision satisfaction. If the efficacy can be proven, the PtDA will be implemented nationwide in Germany to close a relevant gap in the education and care of patients with metastatic melanoma. TRIAL REGISTRATION: ClinicalTrials.gov NCT04240717 . Registered on 27 January 2020.


Subject(s)
Melanoma , Patient Participation , Decision Making , Decision Support Techniques , Germany , Humans , Immunotherapy , Internet , Melanoma/therapy , Multicenter Studies as Topic , Randomized Controlled Trials as Topic
5.
Trials ; 20(1): 18, 2019 Jan 07.
Article in English | MEDLINE | ID: mdl-30616653

ABSTRACT

BACKGROUND: Oncological patients often feel left out of important treatment decisions. However, when physicians engage them in shared decision-making (SDM), patients benefit in many ways and the situation is improved. SDM can effectively be taught to physicians, but participation barriers for SDM physician group trainings are high, making it hard to convince physicians to participate. With this in mind, we aim to develop and evaluate two new dissemination strategies for a brief, SDM training program based upon a proven SDM group-training concept: an individualized context-based SDM face-to-face training (IG I) and a web-based interactive SDM online training (IG II). We aim to analyze which improvements can be achieved by IG I and II compared to a control group (CG) in physician SDM competence and performance as well as the impact on the physician-patient relationship. Furthermore, we analyze differences in satisfaction concerning the two dissemination strategies by means of a training evaluation. METHODS/DESIGN: We examine - based on a three-armed randomized controlled trial (IG I, IG II, CG) - the effectiveness of two new dissemination strategies for a SDM training program compared to a CG receiving no SDM training (voluntary access to SDM training as an incentive for participation after completion of the study). We aim to include 162 physicians randomized to one of the three arms. There will be two assessment points in time (before intervention: T0 and post-training: T1). The main outcome is the SDM competence of physicians as measured by an established observational assessment rating system (OPTION-12) by means of consultations with Standardized Patients. Standardized Patients are individuals trained to act as "real" patients. Secondary outcome measures are the SDM performance (SDM-Q-9) and the Questionnaire on the Quality of Physician-Patient-Interaction (QQPPI) both rated by Standardized Patients as well as the physicians' training evaluation. DISCUSSION: This trial will assess the effectiveness and acceptability of two new dissemination strategies for a brief, SDM training program for physicians. Opportunities and challenges regarding implementation in daily routines will be discussed. TRIAL REGISTRATION: ClinicalTrials.gov, Identifier: NCT02674360 . Prospectively registered on 4 February 2016.


Subject(s)
Decision Making , Internet , Oncologists/education , Adult , Aged , Data Interpretation, Statistical , Female , Humans , Male , Middle Aged , Randomized Controlled Trials as Topic , Referral and Consultation , Research Design , Sample Size
6.
Pain Med ; 20(3): 464-475, 2019 03 01.
Article in English | MEDLINE | ID: mdl-29701812

ABSTRACT

OBJECTIVE: Nonspecific chronic low back pain (CLBP) is a frequent medical condition among middle-aged and older adults. Its detrimental consequences for functional ability and quality of life are well known. However, less is known about associations of chronological age with disability and well-being among CLBP patients. Coping with pain may be harder with advancing age due to additional age-associated losses of physical, sensory, and other resources, resulting in higher disability and lower quality of life. Alternatively, older patients may feel less impaired and report higher quality of life than younger patients because the experience of chronic pain may be better anticipated and more "normative" in old age. METHODS: We investigated an age-heterogeneous sample of 228 CLBP patients (mean age = 59.1 years, SD = 10.2 years, range 41-82 years). Our outcomes were pain intensity, pain disability (as assessed by self-reported activity restrictions and performance-based tests), and measures of quality of life (health-related quality of life: SF-12 physical and mental health; well-being: anxiety, depression, perceived control over life, affective distress). RESULTS: Although older patients had higher performance-based disability, they scored higher on mental health and on most measures of well-being than younger patients. CONCLUSIONS: Our findings provide evidence for a "paradoxical" pattern of age effects in CLBP patients and are thus in line with other studies based on nonclinical samples: Although disability in CLBP patients increases with advancing age, indicators of quality of life are equal or even higher in older patients.


Subject(s)
Low Back Pain/complications , Low Back Pain/psychology , Quality of Life/psychology , Adult , Age Factors , Aged , Aged, 80 and over , Chronic Pain/complications , Chronic Pain/psychology , Disability Evaluation , Female , Humans , Male , Middle Aged
7.
Pain Med ; 20(4): 668-680, 2019 04 01.
Article in English | MEDLINE | ID: mdl-30272221

ABSTRACT

OBJECTIVE: The detrimental impact of nonspecific chronic low back pain (CLBP) on quality of life is well known. However, patients with CLBP represent a remarkably heterogeneous group, and not all of them report compromised well-being. METHODS: In this study, we investigated this heterogeneity by identifying profiles (or clusters) of well-being and their correlates in 239 CLBP patients. To take the multidimensionality of subjective well-being into account, we included multiple well-being indicators (depression, anxiety, affective distress, perceived control over life). For an in-depth characterization of the well-being profiles, we assessed 1) sociodemographic indicators (age, gender, education, marital status, occupational status), 2) pain-related measures (pain intensity, subjective and objective pain disability, number of pain locations), 3) psychosocial resources (mental health, resilience, perceived support), 4) biographical factors (trauma), and 5) somatosensory profiles based on quantitative sensory testing. RESULTS: Based on two-step cluster analysis, we identified three distinct well-being profiles, characterized by either generally high well-being (cluster 1, n = 51), moderate well-being (cluster 2, n = 104), or consistently low well-being (cluster 3, n = 77), respectively. Most differences between the derived well-being profiles regarding sociodemographic, psychosocial, and biographical measures were of weak to moderate effect size. Larger effect sizes were observed for differences in pain intensity and subjective, but not objective, pain disability. Finally, the largest effects were found for differences in psychosocial resources. CONCLUSIONS: Our findings suggest that not only in nonclinical samples, but also in patients with chronic pain, well-being is more closely associated with psychological resources and subjective evaluations than with objective parameters.


Subject(s)
Back Pain/psychology , Chronic Pain/psychology , Quality of Life/psychology , Aged , Female , Humans , Male , Middle Aged
8.
Pain Med ; 19(12): 2528-2535, 2018 12 01.
Article in English | MEDLINE | ID: mdl-29554368

ABSTRACT

Objectives: The aim of this study was to examine visual function and eye symptoms in fibromyalgia patients, with a particular focus on dry eye syndrome and eye pain. Methods: A tertiary care center-based cross-sectional study was carried out in chronic musculoskeletal pain patients diagnosed with fibromyalgia. Chronic musculoskeletal pain patients without fibromyalgia were enrolled as a comparison group. Self-reported eye pain was investigated with the McGill pain questionnaire and the numeric rating scale. In addition, we assessed corrected visual acuity, vision-related quality of life, and self-reported dry eye syndrome. Results: A total of 90 musculoskeletal pain patients were included, with 66 patients fulfilling American College of Rheumatology 1990 criteria for fibromyalgia. Sixty-seven percent (95% confidence interval [CI] = 56%-78%) of the fibromyalgia patients reported eye pain, and 62% (95% CI = 43%-81%) of those were without fibromyalgia diagnosis. Sixty-seven percent (95% CI = 56%-78%) of the fibromyalgia patients reported an experience of dry eye compared with 76% (95% CI = 57%-95%) in the nonfibromyalgia group. Vision-related quality of life was noticeably reduced in both groups. Conclusions: Eye pain and dry eye are common in chronic pain patients, with comparable prevalence in musculoskeletal pain patients with and without fibromyalgia.


Subject(s)
Chronic Pain/complications , Dry Eye Syndromes/complications , Eye Pain/complications , Fibromyalgia/complications , Adult , Cross-Sectional Studies , Dry Eye Syndromes/diagnosis , Eye Pain/diagnosis , Eye Pain/epidemiology , Eye Pain/therapy , Female , Fibromyalgia/diagnosis , Fibromyalgia/therapy , Humans , Male , Middle Aged , Prevalence , Quality of Life
9.
J Cancer Educ ; 33(3): 708-715, 2018 06.
Article in English | MEDLINE | ID: mdl-27966192

ABSTRACT

The aims of this study are to assess patients' preferred and perceived decision-making roles and preference matching in a sample of German breast and colon cancer patients and to investigate how a shared decision-making (SDM) intervention for oncologists influences patients' preferred and perceived decision-making roles and the attainment of preference matches. This study is a post hoc analysis of a randomised controlled trial (RCT) on the effects of an SDM intervention. The SDM intervention was a 12-h SDM training program for physicians in combination with decision board use. For this study, we analysed a subgroup of 107 breast and colon cancer patients faced with serious treatment decisions who provided data on specific questionnaires with regard to their preferred and perceived decision-making roles (passive, SDM or active). Patients filled in questionnaires immediately following a decision-relevant consultation (t1) with their oncologist. Eleven of these patients' 27 treating oncologists had received the SDM intervention within the RCT. A majority of cancer patients (60%) preferred SDM. A match between preferred and perceived decision-making roles was reached for 72% of patients. The patients treated by SDM-trained physicians perceived greater autonomy in their decision making (p < 0.05) with more patients perceiving SDM or an active role, but their preference matching was not influenced. A SDM intervention for oncologists boosted patient autonomy but did not improve preference matching. This highlights the already well-known reluctance of physicians to engage in explicit role clarification. TRIAL REGISTRATION: German Clinical Trials Register DRKS00000539; Funding Source: German Cancer Aid.


Subject(s)
Breast Neoplasms/therapy , Choice Behavior , Colonic Neoplasms/therapy , Decision Making , Oncologists/statistics & numerical data , Patient Preference/statistics & numerical data , Physician-Patient Relations , Adult , Aged , Aged, 80 and over , Breast Neoplasms/psychology , Colonic Neoplasms/psychology , Communication , Female , Humans , Male , Middle Aged , Oncologists/psychology , Patient Participation/statistics & numerical data , Patient Preference/psychology , Referral and Consultation , Surveys and Questionnaires
10.
Chronic Illn ; 14(1): 25-41, 2018 03.
Article in English | MEDLINE | ID: mdl-29226696

ABSTRACT

Objective The purpose of this study was to investigate key factors related to lifestyle changes following acute myocardial infarction (AMI) by eliciting survivors' subjective needs for, attitudes towards and experiences with behaviour changes in their everyday life to improve future interventions promoting lifestyle changes. Methods Semi-structured interviews were conducted with 21 individuals who had recently experienced an AMI. The interviews were audio-recorded and transcribed verbatim. The data were analysed using qualitative content analysis. Results The data analysis revealed that lifestyle changes following AMI are influenced by a combination of individual (physical and psychological) and social factors that can be grouped into facilitators and barriers. The interviews indicated the need for more personalised information regarding the causes and risk factors of illness, the benefits of lifestyle changes and the importance of including significant others in lifestyle advice and education and of individualising support. Discussion Lifestyle change is a continuous process that is not completed within a few months after a cardiac event. Considering the identified themes when developing interventions to promote lifestyle changes following AMI may enhance the effectiveness and sustainability of such interventions.


Subject(s)
Cardiac Rehabilitation/psychology , Health Behavior , Life Change Events , Myocardial Infarction/psychology , Quality of Life/psychology , Adult , Aged , Attitude to Health , Female , Humans , Life Style , Male , Middle Aged , Myocardial Infarction/rehabilitation , Qualitative Research
12.
Z Evid Fortbild Qual Gesundhwes ; 123-124: 46-51, 2017 Jun.
Article in English | MEDLINE | ID: mdl-28546055

ABSTRACT

The main focus of the paper is on the description of the development and current state of research and implementation of patient-centered care (PCC) and shared decision making (SDM) after fifteen years of substantial advances in health policy and health services research. What is the current state of SDM in health policy? The "Patients' Rights Act" from 2013 standardizes all rights and responsibilities within the framework of medical treatment for German citizens and legal residents. This comprises the right to informed decisions, comprehensive and comprehensible information for patients, and decisions based on a clinician-patient-partnership. What is the current state of SDM interventions and patient decision support tools? SDM training programs for healthcare professionals have been developed. Their implementation in medical schools has been successful. Several decision support tools - primarily with support from health insurance funds and other public agencies - are to be implemented in routine care, specifically for national cancer screening programs. What is the current state of research and routine implementation? The German government and other public institutions are constantly funding research programs in which patient-centered care and shared decision-making are important topics. The development and implementation of decision tools for patients and professionals as well as the implementation of CME trainings for healthcare professionals require future efforts. What does the future look like? With the support of health policy and scientific evidence, transfer of PCC and SDM to practice is regarded as meaningful. Research can help to assess barriers, facilitators, and needs, and subsequently to develop and evaluate corresponding strategies to successfully implement PCC and SDM in routine care, which remains challenging.


Subject(s)
Decision Making , Patient Participation , Patient-Centered Care , Germany , Health Policy , Humans
14.
Psychother Psychosom Med Psychol ; 66(5): 195-207, 2016 May.
Article in German | MEDLINE | ID: mdl-27119359

ABSTRACT

The article provides an overview on Shared Decision Making (SDM), which is considered as the ideal form of physician-patient-interaction by many stakeholders of the health care system. SDM is distinguished from other models of physician-patient-interaction such as the paternalistic model and the information model. Besides the degree of acceptance of SDM in the general population and among physicians, barriers for its implementation will be reported. Indications for SDM as well as strategies and support material for its use in individual consultations will be discussed and illustrated by an oncological case study. Effects of SDM for patients as well as for clinicians will be highlighted. After background information on origins of SDM, its significance with regard to health policy in Germany is discussed.


Subject(s)
Decision Making , Delivery of Health Care , Physician-Patient Relations , Chemotherapy, Adjuvant , Colonic Neoplasms/psychology , Colonic Neoplasms/therapy , Combined Modality Therapy , Communication , Education, Medical, Continuing , General Practice/education , Humans , Male , Middle Aged , Neoplasm Recurrence, Local/prevention & control , Neoplasm Recurrence, Local/psychology , Neoplasm Staging , Paternalism , Risk Assessment
15.
Patient Educ Couns ; 99(5): 739-46, 2016 May.
Article in English | MEDLINE | ID: mdl-26658703

ABSTRACT

OBJECTIVE: To test the influence of physician empathy (PE), shared decision making (SDM), and the match between patients' preferred and perceived decision-making styles on patients' decision regret. METHODS: Patients with breast or colon cancer (n=71) completed questionnaires immediately following (T1) and three months after a consultation (T2). Path analysis was used to examine the relationships among patient demographics, patient reports of PE, SDM, the match between preferred and perceived decision-making styles, and patient decision regret at T2. RESULTS: After controlling for clinician clusters, higher PE was directly associated with more SDM (ß=0.43, p<0.01) and lower decision regret (ß=-0.28, p<0.01). The match between patients' preferred and perceived roles was negatively associated with decision regret (ß=-0.33, p<0.01). Patients who participated less than desired reported more decision regret at T2. There was no significant association between SDM and decision regret (ß=0.03, p=0.74). CONCLUSION: PE and the match between patients' preferred and perceived roles in medical decision making are essential for patient-centered cancer consultations and treatment decisions. PRACTICE IMPLICATIONS: Ways to enhance PE and matching the consultation style to patients' expectations should be encouraged.


Subject(s)
Breast Neoplasms/therapy , Colonic Neoplasms/therapy , Communication , Decision Making , Emotions , Empathy , Patient Participation/psychology , Patient Preference , Patient Satisfaction/statistics & numerical data , Physician-Patient Relations , Adult , Aged, 80 and over , Breast Neoplasms/psychology , Colonic Neoplasms/psychology , Female , Humans , Male , Middle Aged , Patient Participation/statistics & numerical data , Perception , Prospective Studies , Referral and Consultation , Surveys and Questionnaires , Treatment Outcome
16.
Dtsch Arztebl Int ; 112(40): 672-9, 2015 Oct 02.
Article in English | MEDLINE | ID: mdl-26517595

ABSTRACT

BACKGROUND: In shared decision making (SDM), the patient and the physician reach decisions in partnership. We conducted a trial of SDM training for physicians who treat patients with cancer. METHODS: Physicians who treat patients with cancer were invited to participate in a cluster-randomized trial and carry out SDM together with breast or colon cancer patients who faced decisions about their treatment. Decision-related physician-patient conversations were recorded. The patients filled out questionnaires immediately after the consultations (T1) and three months later (T2). The primary endpoints were the patients' confidence in and satisfaction with the decisions taken. The secondary endpoints were the process of decision making, anxiety, depression, quality of life, and externally assessed physician competence in SDM. The physicians in the intervention group underwent 12 hours of training in SDM, including the use of decision aids. RESULTS: Of the 900 physicians invited to participated in the trial, 105 answered the invitation. 86 were randomly assigned to either the intervention group or the control group (44 and 42 physicians, respectively); 33 of the 86 physicians recruited at least one patient for the trial. A total of 160 patients participated in the trial, of whom 55 were treated by physicians in the intervention group. There were no intergroup differences in the primary endpoints. Trained physicians were more competent in SDM (Cohen's d = 0.56; p<0.05). Patients treated by trained physicians had lower anxiety and depression scores immediately after the consultation (d = -0.12 and -0.14, respectively; p<0.10), and markedly lower anxiety and depression scores three months later (d = -0.94 and -0.67, p<0.01). CONCLUSION: When physicians treating cancer patients improve their competence in SDM by appropriate training, their patients may suffer less anxiety and depression. These effects merit further study.


Subject(s)
Clinical Decision-Making/methods , Neoplasms/epidemiology , Neoplasms/therapy , Patient Participation/statistics & numerical data , Patient Satisfaction/statistics & numerical data , Quality Improvement/statistics & numerical data , Adult , Evidence-Based Medicine , Female , Germany/epidemiology , Humans , Male , Middle Aged , Neoplasms/psychology , Patient Participation/psychology , Patient-Centered Care/statistics & numerical data , Physician-Patient Relations , Physicians/psychology , Physicians/statistics & numerical data , Prevalence , Quality of Health Care/statistics & numerical data , Treatment Outcome
17.
Z Evid Fortbild Qual Gesundhwes ; 106(4): 264-71, 2012.
Article in English | MEDLINE | ID: mdl-22749073

ABSTRACT

BACKGROUND: Promoting patient involvement in medical decision making has become a desirable goal in medical consultations. Reliable and valid measures are necessary to evaluate interventions designed to promote shared decision making and to understand determinants and associations. The OPTION ("observing patient involvement") scale is the most prominent observation instrument for assessing the extent to which clinicians actively involve patients in decision making. OBJECTIVE: This paper discusses psychometric and methodological characteristics of the OPTION scale. RESULTS: There is little support for the purported unidimensional structure. Although reliabilities are acceptable, results are highly heterogeneous across studies. There is also little evidence concerning validity. In particular, studies mainly failed to support convergent validity. Additional issues pertain to lack of item independence, restriction of range, and failure to consider dyadic aspects. CONCLUSIONS: Given these findings, a number of methodological and conceptual issues still need to be addressed for the effective measurement of patient involvement. Directions for future research are discussed.


Subject(s)
Decision Making , Physician-Patient Relations , Surveys and Questionnaires , Humans , Patient Participation , Psychometrics/statistics & numerical data , Reproducibility of Results
18.
Eur J Public Health ; 22(4): 469-73, 2012 Aug.
Article in English | MEDLINE | ID: mdl-21873278

ABSTRACT

BACKGROUND: Increasing emphasis is being placed on involving patients in decisions concerning their health. This shift towards more patient engagement by health professionals and towards more desire by patients for participation may be partly based on socio-political factors. METHODS: To compare the preferences for shared decision making of patients from eastern and western Germany we analysed five patient samples (n = 2318) (general practice patients and schizophrenia patients from eastern and western Germany). Patients' role preferences for shared decisions were measured using the decision-making subscale of the Autonomy Preference Index. RESULTS: Patients resident in eastern Germany expressed lower preferences for shared decision making than patients in western Germany. This was true after controlling for socio-demographic variables and for patient group. CONCLUSION: The cultural imprint (e.g. western vs. former communist society) seems to have a significant influence on patients' expectations and behaviour in the medical encounter. Health services providers need to be aware that health attitudes within the same health system might vary for historical and cultural reasons. The engagement of patients in medical decisions might not be susceptible to a 'one size fits all' approach; doctors should instead aim to accommodate the individual patient's desire for autonomy.


Subject(s)
Decision Making , Patient Participation , Patient Preference , Patients , Adolescent , Adult , Aged , Attitude to Health , Cooperative Behavior , Female , Germany , Humans , Male , Middle Aged , Patient Satisfaction , Patients/psychology , Patients/statistics & numerical data , Physician-Patient Relations , Regression Analysis , Socioeconomic Factors , Surveys and Questionnaires , Young Adult
19.
Pain Med ; 12(8): 1231-40, 2011 Aug.
Article in English | MEDLINE | ID: mdl-21810166

ABSTRACT

OBJECTIVE: To investigate the prevalence and the type of mental comorbidity in a population-based sample of subjects with non-specific chronic back pain. DESIGN: Representative population-based survey. SETTING: The city of Heidelberg (in southwestern Germany) and 10 adjacent communities. PATIENTS: From a random sample of individuals (N = 2,000), 1,091 subjects completed a questionnaire including a pain assessment. Of those, 188 subjects (17%) fulfilled the criteria for chronic back pain (≥45 days of back pain in the last 3 months) and were subsequently invited to undergo a detailed clinical examination; 131 subjects (70%) agreed to participate. The Structured Clinical Interview for the Diagnostic and Statistical Manual of Mental Disorders IV (DSM-IV) (SCID-I + II) was used to assess current (defined as the previous 4 weeks) mental comorbidity and was completed in 110 subjects (84%) with non-specific chronic back pain. INTERVENTION: N/A. OUTCOME MEASURES: DSM-IV mental comorbidity diagnoses. RESULTS: The overall prevalence of mental comorbidity of Axis-I and -II disorders were 35.5% and 15.5%, respectively. Of Axis-I disorders, anxiety disorders (20.9%) and affective disorders (12.7%) were the most frequent. Of Axis-II disorders, 9.1% of diagnoses was of the Cluster C category (anxious/inhibited). Compared with the general population, the total rate of Axis-I comorbidity was significantly higher, while the total rate for Axis-II personality disorders was only slightly different. CONCLUSIONS: The consistent diagnoses of anxiety, fear, and avoidance in these subjects indicate that also primary care health professionals should consider anxiety disorders in patients with chronic pain, in addition to the affective disorders that are most frequently self-reported in pain patients.


Subject(s)
Back Pain/epidemiology , Back Pain/psychology , Chronic Pain/epidemiology , Chronic Pain/psychology , Mental Disorders/epidemiology , Mental Disorders/psychology , Adult , Anxiety Disorders/epidemiology , Anxiety Disorders/psychology , Comorbidity , Diagnostic and Statistical Manual of Mental Disorders , Female , Humans , Male , Middle Aged , Surveys and Questionnaires
20.
J Interprof Care ; 25(6): 401-8, 2011 Nov.
Article in English | MEDLINE | ID: mdl-21657852

ABSTRACT

Healthcare professionals and organizations, policy makers, and the public are calling for safe and effective care that is centered on patients' needs, values, and preferences. The goals of interprofessional shared decision making and decision support are to help patients and professionals agree on choices that are effective, health promoting, realistic, and consonant with patients' and professionals' values and preferences. This requires collaboration among professionals and with patients and their family caregivers. Continuing professional development is urgently needed to help healthcare professionals acquire the knowledge, skills, and attitudes necessary to create and sustain a culture of collaboration. We describe a model that can be used to design, implement, and evaluate continuing education curricula in interprofessional shared decision making and decision support. This model aligns curricular goals, objectives, educational strategies, and evaluation instruments and strategies with desired learning and organizational outcomes. Educational leaders and researchers can institutionalize such curricula by linking them with quality improvement and patient safety initiatives.


Subject(s)
Cooperative Behavior , Decision Making , Education, Continuing , Interprofessional Relations , Patient Care Team/organization & administration , Staff Development/methods , Clinical Competence , Curriculum , Educational Status , Faculty , Health Promotion , Humans , Knowledge , Learning , Models, Educational , Needs Assessment , Teaching/methods , United States
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